What is the vaccine guide?

I have been seeing more and more of the “Vaccine Guide” in social media and decided to take a look at it. What is it, who made it, what does it have inside of it?  As I am fond of doing, I am taking one for team pro-vax here by reading it myself.

The “Vaccine Guide” is a very slick, well-made looking website with a guide supposedly to everything you need to know about vaccines. You can browse the information online by clicking on the colored sections below or you can download it and take it to a printer to be printed. People also sell them, already printed, online for about $170 a pop in full color.  The guide was created by Ashley Everly Cates, an Idaho woman with a bachelor’s degree in environmental toxicology from University California Davis. She currently runs a group called  Health Freedom Idaho and, as near as I can tell, has never actually worked in toxicology nor written any papers. It should be noted that it is usual practice to only call those with a Ph.D. in toxicology a “toxicologist” but Ashley continually markets herself as a practicing toxicologist. As she has never had any experience beyond the undergraduate degree, this is misleading.

Note: I am going to address a recent comment made to me. Please note there are three reasons I am specifying that Ashley is not a toxicologist. She has only a BS in the field, has never worked in the field, and has published no papers in the field. The BS alone is not the only factor. 

I am a very visual person so I will be referring to every color by it’s Crayola name.

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First up, yellow-orange section or VAERS, etc.  I notice that Ashley has linked to some good information on the National Childhood Vaccine Injury Act (NCVIA) until I realize she has only put up screenshots of pages, not actual links to the actual data. Furthermore, none of the screenshots come with explanations of why they were chosen. There is also a screenshot of a report from Harvard Pilgrim medical group on VAERS reports but the report is not explained in any detail. I feel it would be difficult for the average person to understand the implications of the report and the validity of the data. In actuality, Harvard Pilgrim is a Vaccine Safety Datalink member and they are charged by the US government to monitor vaccine safety. Within their system, they found some underreporting of vaccine adverse events but it is not clear, by reading the study, if this underreporting has any significance on public health, is an artifact of just their system, or is perpetuated by other VSD members.  I feel strongly it is disingenuous to post this study without clarification.

Update: It has come to my attention that I missed the word source on each page of Ashley’s guide. My apologies.  Thus, one can, in fact, link out to the original sources if you use her website. However, if you print the guide and/or buy it as a notebook, you will only get the screenshots. I have edited this post to reflect this correction.

Next up, neon carrot section: vaccine inserts.  This is just URLs linking to the inserts without any explanation of their validity or what they really mean. Nothing is mentioned about how inserts are only written about clinical trials and how they do not list proven side effects. With that in mind, here are some great links on how to read vaccine inserts.

Vaxopedia      or     Skeptical Raptor

The third section is mango tango: It is about vaccine ingredients. First off is a list of vaccine ingredients or excipients.  Then, Ashley has put some links to screenshots about specific ingredients. What I notice right away about the screenshots is that there is nothing about why she thinks they are valid?  This is what we call cherry-picking – choosing studies that make your point but not checking them for actual validity. Validity is incredibly important. Maybe Ashley did not learn this at Davis? As an undergraduate at the University of California, Irvine, I certainly learned the importance of judging a study for validity. Here is a very good read on the basics of how to judge a study for validity.

What Ashley has done is list a bunch of studies showing the supposed dangers of aluminum adjuvants but she has not quantified why she thinks those studies are valid nor compared to other literature. This kind of analysis is shoddy and would have earned her a very bad grade in her research methods class.

In reality, aluminum adjuvants are very safe. My scientist friend, Abe, otherwise known as the Blood-Brain Barrier scientist, has done an excellent job of explaining on his blog. Abe gets to actually refer to himself as an expert as he has a Ph.D. in molecular medicine and is a professor at Texas Tech University.  Abe also has a blog where he explains aluminum adjuvants, among other subjects. Herein, Abe discusses junk science (cough what Ashley shares cough) and why it is junk. As I was taught by the esteemed Dr. Linton Freeman, professor emeritus at University California, Irvine, you have to be able to critically analyze pros and cons of studies, validity, and reliability and explain this in detail, if you want to be taken seriously. Anything less is shoddy work and deserves and F. Lint is a hardass, but I got the only As in his classes for a reason. Man is a genius.

The rest of the ingredients section is more negative thoughts on ingredients, screenshots of papers decrying ingredients, and nothing explaining validity at all. It is intellectually dishonest to try to persuade people with an emotional argument and not present valid arguments to make your point. Ashley has presented nothing valid at all. Just screenshots.

For more on vaccine ingredients, I would recommend the Children’s Hospital of Philadelphia Vaccine Education website as well as Scientist Abe’s website. Todd has also done a nice job at his blog, Harpocrates Speaks.  I share these links because they are more than screenshots – the explain the ingredients in full and link outside to more information.

The wild watermelon section is called Asymptomatic transmission and shedding.  Again, we have more screenshots without explanations. As the average reader is not trained in how to read studies for validity, I again find this disingenuous.  I am somewhat knowledgeable about how to read studies but I do not have a Ph.D. so I ask for help when I need it. I have resources to help me understand what I am reading. Ashley is relying on the appeal to her authority and assuming readers will simply take her word for why these studies indicate vaccines should be avoided.

Here is the problem with Ashley’s motive: lawmakers and policymakers are going to rely on actual experts in the field to inform them on risks, benefits, and issues therein.  When it comes to understanding the FDA pertussis studies on baboons, many antivaxers assume the two studies indicate baboons shed vaccine-derived pertussis to others when nothing could be further from the truth.  The FDA studies with baboons concluded that vaccinated baboons protected their newborns from pertussis, did not get a severe infection when exposed, did not shed the vaccine, but could colonize pertussis infection in their throats without symptoms. In other words, the worst that can happen with pertussis vaccine is you might get a mild pertussis infection or you might have the bacteria in your throat with no symptoms.  So, being vaccinated doesn’t prevent 100% of pertussis infections but it prevents babies from dying and prevents the 100-day cough. Does Ashley explain these facts?  NOPE!  Bad form!!

Ashley then goes on to cite a very few rare examples of vaccines shedding but does not tell readers how rates chickenpox, flu, rotavirus, rubella, measles, mumps, etc are all extraordinarily low THANKS TO VACCINES. Read The Pink Book for infection data.

Again, this is extremely disingenuous! This is borderline lying, in my book, as it is implying vaccines cause disease without explaining the validity of these actual case studies. One study, for example, is about a boy who got chickenpox vaccine, got the very rare pox, and his pregnant mother also got an infection. This could only have happened if she had been touching her son’s pox. This is extremely rare but also very easily avoidable – don’t get your toddlers vaccinated for chickenpox if you are pregnant and, if you are, don’t touch the pox!  There is a very good reason disease rates are low and it’s name is VACCINES.

The fuschia section is called Effectiveness.  This section is, as usual, only screenshots of studies, often just abstracts. Why she thinks abstracts are enough to read is confounding.  Abstracts are tiny summaries. One must read the full study to judge. Again, did Davis not teach her this fact?? This section could easily fool people until they read the full studies and compare to rates of actual disease, look at genotypes and strains, and realize the whole dang section is proof vaccines work! Also, most of the links therein are not vaccine strains anyway.

Ashley also links to information on pertussis outbreaks and herd immunity.  This is a common trope from antivaxers – the idea that if vaccines don’t work 100% then they are useless. For example, she cites a Fordham University mumps outbreak. There were 13 cases, all vaccinated, out of 10,000 undergraduates. Thus, the vaccine had a hugely effective rate and protected most all students. Vaccine win.

Necessity of vaccination, the royal purple section, is Ashley’s attempt to convince people vaccines are not necessary. For some reason, it starts off with a screenshot of a report from the Royal College of Ireland in 1959. Baffling. I guess she feels this is proof measles is harmless?  I prefer to link to this paper by Walter Orenstein, et al, which analyses the death and complications rates in the USA.

Ashley goes on to link to some more papers questioning the contribution vaccines made to history. For example, she links to a paper on the CDC history of drinking water. As measles, diphtheria, flu, and more are respiratory infections, clean water did not affect them.  She further links to mortality (death) statistics without quantifying that while Americans were dying less of preventable diseases, they were suffering more. As the Orenstein, et al, paper indicates, measles rate was higher in 1950s USA than any other decade in the USA. People were dying less because of medical care but they were still suffering.

Another abstract to which she links is entitled “Human milk mucin inhibits rotavirus replication and prevents experimental gastroenteritis.” As the full study is not linked, the implication is that breastfeeding prevents gastro infections. I am here to tell that is 100% false. Read my tale here.

Plus, again, it is not genuinely informative to link only to an abstract. What does the rest of the paper say? Is it valid? Are the methods they used valid and reliable? Ashley does not cover any of these topics.

The rest of this section has some information on how vitamins might help cure diseases like measles and polio but we know that, for example, vitamin A is only used with measles to lower the complication and rate. It does not eradicate the risks. With viral diseases, there is no good evidence vitamins prevent suffering. Vitamin C does not cure a cold.  Vitamin C is not a cure-allPauling was wrong. Just because some guy in the 1930s gave polio patients vitamin C and some of them did not die does not mean vitamin C is a cure-all.

The navy blue section is on adverse reactions.  This is, once again, more screenshots of abstracts with no explanation as to validity. I have been over how autism is not caused by vaccines many times. You cand read more here and here. Ashley is lying to her readers to say vaccines cause autism and not explain the validity of the abstracts she has screenshot or link to more current research. This is unbelievable maddening. Shameful!  This entire section is an embarrassment to the University of California. Honestly, they should revoke her degree. Linking only to abstracts and not explaining reliability is egregious. She lists few, rare side effects documented but does not link to the vast number of positive outcomes from vaccines? Compared to the number of vaccines given, the USA has compensated 0.0000011% of vaccinees for injury. That is an INCREDIBLE safety rate.

Ashley is not sharing with her readers any accurate science. She is lying.  She shares a screenshot of a badly done analysis of SIDS rates without quantifying that SIDS rate is at a historic low in the USA and the more we vaccinate, the fewer babies die.

The final section is pine green and called Incentives.  This is where the conspiracy theories start. There is a link to a HuffPo article SPIDER, a made-up controversy that went nowhere. There is a link to the badly done Cochrane HPV review that led to a kerfuffle and some careers tanking. There is a link about the ICAN HHS lawsuit that went nowhere. I wrote about that here.

She further goes on to discuss provider incentives but does not explain them at all. I explain how they work here and my friend, Vince, does so here.

In conclusion, this is a sad bunch of cherry-picked, screenshots of abstracts with no explanations as to the validity, nothing is given to readers to inform them why what they are reading is important. Ashley is duping her readers and relying on their gullibility. Most parents want their children to be safe and healthy and Ashley is using scare tactics to influence parents into not vaccinating.

 

She should be thoroughly ashamed of herself.

For more on this guide, be sure to read Science-Based Medicine’s post on it.

Remember to always verify claims. This is a perfect example!!

 

 

Of antivaxers and misinformation (mean girls part 2)

Things are certainly heating up in the legislature in the USA.  All over the country, vaccine bills are being proposed, mostly in favor of vaccines, in reaction to measles outbreaks. With over 300 cases of measles in the USA, as of March 21, 2019, we definitely need to do something to improve community immunity.  This is making those who are opposed to vaccines (antivaxers) very concerned and they have stepped up their social media presence. In other words, the mean girls are actively attacking more and more provaxers.

 

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All over the internet, vaccine misinformation is starting to be limited by corporations feeling the heat for allowing dangerous ideas to proliferate. Gofundme has cut Larry Cook, leader of Stop Mandatory Vaccines, off from his primary sources of income, Gofundme and Facebook ads.

Pinterest has also started limiting antivaccine misinformation, as has Amazon and Instagram.

Antivaxers are thoroughly flummoxed about why this is happening. Their best theory? Pharmaceutical companies have bought everyone off.

 

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I am, apparently, completely paid off by pharmaceutical companies, too,

 

 

 

 

 

 

 

I guess they don’t really understand that CDC Immunization Champion Awards only go to people NOT connected to the pharmaceutical industry.

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But, what those opposed to vaccines do not understand is how very much they do indeed spread misinformation. Take these posts, as examples, which are written by a leading antivax leader in my state, Washington, in regards to pro-vaccine legislation currently in the works. She literally cannot fathom how a few representatives who spoke misinformation against the bill were not taken seriously by the other representatives who voted in favor of it. She cannot fathom that anything other than pharmaceutical company coercion is behind these bills.

 

 

 

 

 

 

 

Taking it further, let’s look at what she considers good information.

 

 

 

 

 

 

 

1.Measles virus sheds for 1-13 days:  measles virus from the vaccine can be detected in the urine of some individuals. What she does not say is there are zero cases of measles virus shedding to others; aka there are no outbreaks caused by measles vaccine.

2. Measles in fully vaccinated school kids: this is a study from before the USA recommended two MMR vaccines for children. Before the 1990s, there were a few outbreaks of wild measles in those who had had one MMR. Now that we give two MMRs to children, literally 80% of more of measles cases in the USA are in unvaccinated.  And they are all wild measles strains.

3. Measles in a vaccinated group in Ireland: This is another study of children who had only one measles vaccine. It is well known that one measles vaccine provides immunity for life to only 93-95% of recipients so well vaccinated means two MMRs in childhood, not one.

4. “Measles vaccinated child responsible for outbreak in British Columbia” is actually the case of one child getting measles possibly from her vaccine, weeks after the shot, mystifying doctors.  There is no other case on record. She did not infect anyone else.

5. New  York measles outbreak linked to vaccinated is the only case on record of a twice vaccinated woman getting wild measles and passing wild measles to others.

6. Measles among the vaccinated is, again, cases from back before two MMRs were recommended.

Notice how much Jaclyn Gallion, Board member of Informed Choice Washington (ICW), aka Jaci Knutz, gets wrong. The person in New York was a woman, not a man. The cases from before 1996 were back when only one MMR was recommended. Now that we give two, measles is very rare in vaccinated persons. The Disney outbreak in 2015 was in 88% unvaccinated persons.  In Europe, there were 82,000 cases of Europe last year and 87% of patients were unvaccinated.  There were 72 deaths from measles last year.  In Clark County, Washington state USA, there have been 73 cases of measles and only three had one vaccine. The rest were unvaccinated.

Why does this group and its leaders post so much misinformation?  I have addressed their misinformation about vaccines and pregnancy but they are also spreading dangerous misleading misinformation about all vaccines. They claim to post only good facts.

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On their website, they post some information about how measles had a relatively low death rate before vaccines. Apparently, they are unconcerned with the 30% complications rate and, instead, they post some vastly dangerous information from a group called Physicians for Informed Consent (PIC). Then, they run an ad for a class they are offering on natural immunity.

So, what is wrong with all of this? For starters, PIC is a vastly ignorant and dangerous group. Their propaganda was debunked by our friend, Dr. Vince Ianelli, here. “The Physicians for Informed Consent even talks about benefits of getting measles, but somehow leaves out any talk about the risk of getting SSPE after a natural measles infection.

What else do they leave out? The idea that people who survive a measles infection can have some immunosuppression for up to two to three years! This measles-induced immune damage puts them at risk of dying from other diseases and helps explain why kids who are vaccinated against measles are also less likely to die from other childhood infections.”

ICW even goes so far as to claim that having a wild illness is better for the immune system than vaccine immunity.  Yet, there is literally 100% international scientific consensus that vaccines have far greater benefits than risks.

Are they lying? No. They honestly believe what they post. They are dangerously ignorant and far too conceited to consider they might be wrong. They cannot step outside their agenda to even consider that they don’t have any real understanding of how to read scientific studies. They perpetuate long ago debunked ideas, like the blurb about Johns Hopkins Hospital. This is the hospital’s current policy on vaccines and visitors:

 Siblings must be supervised by an adult family member at all times. Siblings under age 2 may not visit. Siblings who are 13 or older may visit between 9 a.m. and 9 p.m. while those aged 2-12 may visit on Wednesday, Friday and Sunday during designated times. Siblings under 2 years old may not visit. Siblings 2-12 years of age must have a NICU Sibling Visitation Screening Form completed by their regular health care provider before their first visit. Siblings whose vaccinations are not current will not be allowed to visit. Those who have received the chicken pox vaccine and developed a rash may not visit until the rash is gone. Those who have not had the chicken pox vaccination nor a documented case of the chicken pox will be screened before each visit for possible exposure within the last four weeks and will not be allowed to visit if exposure has occurred. Sibling visitation may be suspended completely on the advice of the Infection Control Department or during times of unit emergency.”

This is why it is a very good thing that social media giants are limiting their posts. They post misinformation right and left. They cannot fathom they could be wrong. They are so paranoid they think “big pharma” must be trying to control us. They are the reason we have measles back in the USA.

Please do your part and always verify claims.

 

Kathy

Del Bigtree is stubborn

So, I took another one for the team. Happy reading.

Well, I got a bit famous this week as Del Bigtree not only seems to have read my blog but mentioned me, by name, and my blog on a recent show. The post he mentions is entitled Del Bigtree is not a scientist and is about how Del’s antivax organization, Informed Consent Action Network, wrote to the USA’s Health and Human Services department about vaccine safety concerns and the HHS reply was rather stunning.  My friend Dorit also wrote about it over at Skeptical Raptor.

 

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Now, Del has replied to HHS and, in his video about it, he mentions my blog and Dorit’s.  Kinda made me giggle to be so famous so I have watched the video and read his document. You can find a copy of Del’s letter to HHS here. This is his second letter to HHS.  If you get confused, links to all letters are at the end of this post.

First of all, he thinks he did not get answers to his original questions.

HHS’s letter begins with the incorrect claim that the safety of many pediatric vaccines was investigated in clinical trials that included a placebo, and falsely implies these trials are typically longer than mere days or weeks. (Section I below). It then fails to support the safety of injecting babies with the Hepatitis B vaccine (Section II) and reaffirms HHS’s refusal to: automate VAERS reporting (Section III); research the most commonly claimed vaccine-injury pairs (Section IV); identify which children will suffer a serious vaccine injury (Section V); pause claiming “Vaccines Do Not Cause Autism” until it has the studies to support this claim (Section VI); conduct vaccinated versus unvaccinated studies (Section VII); purge itself of conflicts of interest (Section VIII); or use the Vaccine Safety Datalink and PRISM to actually improve vaccine safety (Section IX). 

Del’s first complaint is that many vaccines were tested without a placebo. What he means is that not all vaccines were tested with saline placebo. For example, the Boostrix vaccine for tetanus, pertussis, and diphtheria, a tetanus-diphtheria vaccine was used as the placebo. He goes on to list other vaccines which use an older vaccine or an adjuvant as placebo instead of saline. This is a common source of concern amongst antivaxers who don’t realize or don’t understand how placebos can be other than saline and be a valid placebo. The World Health Organization has a great document detailing the ethical framework for use of placebos in vaccine trials.

Placebo use in vaccine trials is clearly acceptable when (a) no efficacious and safe vaccine exists and (b) the vaccine under consideration is intended to benefit the population in which the vaccine is to be tested. In this situation, a placebo-controlled trial addresses the locally relevant question regarding the extent to which the new vaccine is better than nothing, and participants in the placebo arm of the trial are not deprived of the clinical benefits of an existing efficacious vaccine.

Placebo use in vaccine trials is clearly unacceptable when (a) a highly efficacious and safe vaccine exists and is currently accessible in the public health system of the country in which the trial is planned and (b) the risks to participants of delaying or foregoing the available vaccine cannot be adequately minimized or mitigated (e.g. by providing counselling and education on behavioural disease prevention strategies, or ensuring adequate treatment for the condition under study to prevent serious harm). In this situation, a placebo-controlled trial would not address a question that is relevant in the local context, namely how the new vaccine compares to the one that is currently in use, and participants would be exposed to unacceptable levels of risk from delaying or foregoing a safe and effective vaccine that is accessible through the public health system.

The World Health Organization clearly considers that saline placebos are not required or even ethical in most vaccine trials. The original response to Del from HHS mentioned that inert placebos are not required. Del is not learning.

At this point, I am able to skip over the next 17 pages of Del’s document as his argument about saline placebos is not valid.

His next concern is that hepatitis b vaccine trials were only 4-5 days long. As I pointed in my post, Hepatitis B Vaccine is safe and necessary, 

Del is concerned that the Hep B vaccine was only tested for 4 days during the pre-licensing phase. This comes from the insert, of course, and it is actually stated that children in the clinical trial were monitored for 5 days after the vaccine. Of course, we know the limitations of vaccine inserts.  Del, however, seems to be unaware of the safety and efficacy testing that is done after the insert was written. Let me give you a little research hint. If you want to find studies related to a vaccine, go to the CDC’s page for that vaccine and click on the information for providers and healthcare professionals. This is where they list the safety and efficacy studies.  The parent information section is written much more simply.  In the provider section, you can find a lot of research information, including the link to the recommendations of the Advisory Committee on Immunization (ACIP)’s document on Hepatitis B virus and vaccination. This document has a long list of safety and efficacy data, including data analysis from the vaccine safety datalink (VSD) and the Vaccine Adverse Events Reporting System (VAERS). A great deal of safety study has been done AFTER the clinical trial.

This is exactly what the first HHS letter told Del. Del just doesn’t believe in facts. But, Del, I have to tell that you just because you don’t like the answers does not make them wrong. It makes you stubborn.

Del’s next concern is that because saline placebos are not used he feels HHS has abandoned this duty by not requiring long-term placebo-controlled clinical trials. Without such trials, the actual safety profile of each pediatric vaccine, or any combination thereof, cannot be determined before they are – pursuant to HHS’s childhood vaccine schedule – injected into millions of American children. Once that happens, HHS becomes utterly conflicted from funding or conducting research that may find that a vaccine HHS previously licensed and recommended does, in fact, cause significant harm to more than a few children.

This is again an example of Del not liking the answers he gets. But, that does not make him right. Vaccines go through a minimum of 10-15 years of testing at many levels, but Del focuses only on the clinical trial phase.  There is a great deal more to vaccine safety study, including post-licensure monitoring of vaccines. You can read more about all the stages here. 

Del’s next questions are about VAERS, the Vaccine Adverse Event Reporting System. (note that Del calls it the “report” system, misspelling it.)  In the original response to Del, he was told the recent improvements HHS had made to VAERS. HHS tells Del that they are studying and exploring options to link VAERS with health centers around the country. Del implies, in his second letter, that HHS refused to cooperate with a health system called Harvard Pilgrim. Del feels vaccine safety efforts should be moved forward swiftly but connecting a government database to medical center databases around the country seems like such a huge job to me that I can see why HHS is moving slowly.

Again, Del is criticizing the answers he is getting. That does not make the answers wrong.

A good bulk of the next part of letter 2 is about more criticisms of vaccine safety. Del believes vaccines have not been studied enough and HHS disagrees.

The next section of Del’s letter is about HHS not funding enough research to determine who is at risk for vaccine injury. HHS gave him two links to read but he is not satisfied with them and he finds pharmaceutical funding linked to one of the scientists involved thus, in his mind, tainting the findings. Del’s concern is that Between 2015 and 2017, HHS spent over $14 billion purchasing and promoting the universal use of HHS recommended vaccines. 281 During this same time period, HHS certainly could and should have funded more than two studies seeking to identify which children should be excluded from receiving one or more vaccines in order to prevent a serious vaccine injury.282 This research should also not be conducted by individuals who receive funding from the pharmaceutical company whose vaccine product is being reviewed. 

I will say that it could go further to appease antivaxers if HHS did conduct more than two studies in this area and if they helped to fund a study from a large health organization of vaccinated versus unvaccinated patients and health outcomes. I don’t agree with Del that the science is lacking nor do I think 10,000 studies would change his mind but a few more would be good. Vaccine injury is very rare but if we knew more about it antivaxers might feel better.

Del’s 9th concern is that the vaccine-autism connection has not been fully studied. He wants HHS to study the connection between DTaP (diphtheria, tetanus, and pertussis vaccine) and autism. He also feels the hepatitis b vaccine given at birth should be studied for a relationship to autism. His latter concern is based on a very badly done “study” which correlated hep b vaccine with autism. This is a very weak study that has been widely discredited. Apparently, Del missed that memo. Del did not specify why he wants DTaP studied but my guess is the aluminum adjuvant, which is widely touted by antivaxers as causing autoimmunity and autism. Of course, that has also been widely discredited. You can find info on that here and here and here.  Del also brings up the long-ago debunked “cdc whistleblower” nonsense. Seriously Del? We are all getting pretty tired of that dead horse. If you want more reading on that dead horse, you can go here and here.

I guess Del has a minor point here that saying vaccines do not cause autism isn’t 100% valid as not all vaccines have been studied. Perhaps we needed a better way to put it that vaccines have been extensively studied and enough evidence has been found that unvaccinated get autism and that MMR (measles mumps rubella vaccine) is not linked with autism that it is time to move on from the idea that vaccines cause autism. Antivaxers first thought mercury caused autism. When thimerosal, a mercury-containing preservative was removed from pediatric vaccines, autism rate did not drop. They then moved on to blaming MMR because of the timing of the most notable symptoms of autism. That has been debunked so now they want to blame aluminum adjuvants. This comes from Claire Dwoskin whose Dwoskin Foundation funds the Children’s Medical Safety Research Institute (CMSRI).  CMSRI is the funding agent behind most of the recent (shoddy) research linking aluminum to autism. You can read about that here here here and here.

Del is further concerned that HHS has supposedly ignored something from a Dr. Andrew Zimmerman about autism and vaccines. Del claims that Department of Justice lawyers misled Vaccine Court by presenting a report from Dr. Andrew Zimmerman in which he stated MMR and thimerosal-containing vaccines do not cause autism, even though Dr. Zimmerman has told them that there are exceptions in which vaccines may cause autism. However, as my friend Dorit explains here, there is no new evidence that vaccines cause autism so Dr. Zimmerman’s words mean nothing.

The rest of Del’s second letter is about how he feels HHS has bias and they should study children’s health issues with regard to vaccines more. This is all his opinion and it comes from a place of passionately believing children would be 100% healthy if we had no vaccines at all. People like Del believe all children’s health problems stem from vaccines and are vaccine injuries. Rising rates of autism, learning disabilities, special services, allergies, and you name it are all the fault of vaccines, to Del. This is irrational and there is no reason for HHS to take his complaints seriously.

The stated purpose of vaccination is to improve the overall quality of health of Americans and reduce mortality. Yet, the increase in HHS’s childhood vaccine schedule over the last 30 years from 8 vaccine injections to 50 vaccine injections (plus 2 injections during pregnancy) has occurred in lockstep with the increase in the rate of autoimmune, developmental and neurological disorders in children from 12.8% to 54%. HHS has no explanation for why U.S. children today are plagued with a chronic disease and disability epidemic. 

This 54% claim comes from a study of referrals to insurance companies for services. This study was originally published on the Age of Autism blog in 2011 and has since become a huge part of the antivax rhetoric machine. You can read the full study here.  Someday, I am going to write a blog post just about this study but the gist is here in this figure.

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Most of the children in the study who required special services are obese. 43.2% as of May 2011 when this study was published.  That has nothing whatsoever to do with vaccines. Risk of developmental delay is likely linked to the number of premature babies surviving birth and the number of drug-addicted babies surviving birth, not vaccines. This study was conducted with children born before vaccines were recommended in pregnancy so there is no link there. Allergies and asthma have been proven not to be caused by vaccines and are more likely resulting from the late introduction of solid foods, air pollution, and over cleaning (the hygiene hypothesis). When I was a child in the 1970s, there were definitely children who should have been treated for what we now call learning disabilities, ADD, ADHD, autism, anxiety, depression, Asperger’s, PDD, and Tourette but they were ignored. There was no special education!  The first special education law was enacted in 1975 in USA and took decades and numerous lawsuits to get to where we are today. These things are not new. We are just only now defining, diagnosing, and treating them.  High school graduation rate in USA has gone up from 41% in 1960 to 89% in 2017.  Why don’t antivaxers pay attention to that statistic? Between 1980 and 2009, premature infant birth rate rose 36%, but again antivaxers don’t pay attention to details.  They just want to blame everything on vaccines because that sounds easy. They passionately want to believe that humans would be perfectly healthy if we had clean water, flush toilets, some CBD oil, some Plexus Pink drink, a small fortune in supplements, weekly chiropractic adjustments, and some magic crystals. (I am not kidding, that is the impression I get from them)

But infant mortality and SIDS rates are at all-time lows in USA. I blogged about that here and linked to the data. Child hospitalization rates are down.  Child cancer rate has not changed much since 1970 but the cancer survival rate is higher.

Why don’t antivaxers pay attention to these statistics?  From the perspective of this mom, autism mom, special education teacher, and informed human, LIFE IS BETTER NOW THAN EVER. (aside from Trump but that’s another topic)

 

Del’s final plea to HHS is that he wants an independent board to review vaccine safety. He does not agree that the Advisory Committee on Immunization Practices (ACIP) or the Institute of Medicine (IOM)  groups are good enough for the American people. He thinks the Vaccine Safety Datalink studies are not good enough because when a VSD study is conducted by HHS, in violation of basic scientific standards and process, the underlying raw data is almost never available for inspection by the public and other scientists.  Refusal to make this data available raises serious concerns regarding reproducibility and transparency. HHS regulations, in fact, provide severe penalties if researchers, using HHS funding, refuse to share data underlying their studies, but HHS does not apply this same standard to their own VSD studies. Third, the secret studies that HHS performs using the VSD with secret data are virtually all squarely aimed at increasing vaccine uptake, even for uses and in populations not approved by the FDA. This concern about Vaccine Safety Datalink (VSD) studies is interesting to me because he is basically asking our government to violate the privacy act, HIPAA.  The VSD members can study reports to VAERS made from their own patients because they can access the medical records. Del wants our government to allow independent researchers to access people’s medical records?  Sorry, Del, but that is not going to happen.

The other vaccine safety study database is called PRISM and Del is concerned about that, as well, saying Like the VSD, it is unlikely HHS will use PRISM to publish a study that confirms any serious widespread harm from vaccination. If it did, HHS would be developing the very science that would then be used against it in Vaccine Court, potentially resulting in crippling financial liability as well as loss of reputation. Thus, he is saying that the government is colluding with the pharmaceutical industry to hide vaccine injuries because the pharmaceutical industry would be crippled by the liability.  Del, if there was any hint that vaccine makers would be held liable for more claims, they would just stop making vaccines. That is what happened in the 1980s and why we have the National Childhood Vaccine Injury Act in the first place.

 

Furthermore, special needs children cost the US government a lot of money. They would save a lot of money if something as simple as not vaccinating could prevent special needs from existing. I think it is irrational to conclude that our government would collude with pharmaceutical companies so much that they get more money from pharma than special needs children cost. Just completely irrational.

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At this point, I am stunned that Del believes his own misinterpretations. I think ZdoggMD is right here, that antivaxers lack critical thinking skills and are stuck in the concrete stage of thinking.

I sincerely hope HHS ignores this letter Del sent them because he does not deserve a reply. He will never learn from them, no matter what they say. Del Bigtree has issues with vaccines because he is as stubborn as a mule and won’t learn he is wrong.

 

With one large sigh, I bid you adieu

 

Kathy

 

HHS reponse to Del’s First letter to HHS

Del’s Second letter to HHS

All letters to and from Del and HHS

 

PS By the way Del, one of your fans once contacted me on Twitter and asked me to debate you. I replied that if you ever want to come to Bellingham, WA, I will gladly sit down with you for coffee, off the record, not cameras or recording. Why? Because I am always up for a chat but I don’t want to risk having my image or words edited in a way that could be used against me.

 

Antivaxers are mean girls

 

 

I have noticed that antivaxers have a tendency to attack provaxers with what I would call immature vitriol. Vitriol is a term from chemistry meaning caustic but it fits their behavior perfectly. We see it often when they make nasty memes about Dr. Richard Pan or Dr. Paul Offit or my very kind and sweet friend Dorit Rubinstein Reiss, a legal scholar with expertise in vaccine law.  Here is an example of the kind of immature and vitriolic posts and memes they make, this one about California Senator, Dr. Richard Pan.

 

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This week, some of the ladies from Informed Choice Washington, the antivax group in my fair state, chose to aim their vitriol at me. This came after I watched two of them, Susie Corgan and Jaclyn Gallion, testify at the latest ACIP meeting.  Jaclyn apparently took offense and posted about it on her Facebook wall.  [Sidenote: I find it funny that she has me blocked but I still get sent screenshots. Nothing is private online!]

 

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Let’s go through her thread.

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So, in this post, Jaclyn posted a link to my last blog post. She thinks I took the photos from her but I actually gathered from friends who found them around the internet. Webster defines “Gaslight” as “manipulate (someone) by psychological means into questioning their own sanity.”  I am not sure what she thinks is gaslighting about my comment.  I did not call her sanity into question at all.

 

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Next up we have Sandy who used to bug me on Twitter about debating Del Bigtree. I always said I would be fine with doing it if he could promise to not record audio or video.  Given what he does with clips, how nasty he can be, why would I trust him not to manipulate my words?  She never did set that up. I am not worried about how I look so her comment is very strange. I could make a comment about Del’s looks right now but I am going to rise above.

I did leave a lot out of my post about their ACIP commentary, that is true. I did not feel the need to comment on every single woman’s thoughts.

 

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This made me laugh. I won an award from the CDC, as you can see in my about page, but I had to prove no ties to pharma to qualify. I love how they blindly believe each other without verifying a thing.

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I am not sure what Jaclyn means about trolling. I don’t know anything about her children and I never post on other people’s pages unless we are FB friends. I have never posted on Jaclyn’s FB page.  As for Chris, she posted more than once about her son and so I made a few comments about him. He and my daughter have the same diagnosis so I figured we could chat. She took great offense and blocked me. I found that confusing since she opened the door by labeling him as autistic. [shrug]

Oh, an I am not a member of the Antivax Wall of Shame. I actually find that group too negative and have never been a member. Go ahead and check their membership.

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I am not sure what Drella is talking about. I had several friends help me edit my blog post about them.  I did find one more typo today.  I would be more than happy to entertain Drella’s edits if she wanted to send them to me.  It certainly seems remarkably petty, to me, to make the comment she did with no specifics.

Hi Jack! Always like to see you on my blog. I miss bantering with you, now that you blocked me on Twitter and Facebook.

 

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I am not sure who the Housers are. I will have to look. As for hairy actually, I am quite not hairy. LOL  It is telling that Michele, whom I don’t know at all, called me those names. is that really what matters to her? Not the science, just the way someone looks to her?  And is she really THAT perfect that she is above criticism?

 

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I don’t appreciate negativity so I have Craig Egan and all his iterations on block. But, hey, thanks for thinking we are that organized that we are one and the same! What a funny comment!

 

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I am not sure how they think I can be a troll if I don’t troll antivax pages.  A troll is a person whose seeks out the opposition and posts to argue. For example, when these ladies post on the Spokane Regional Health District Facebook page or the Washington State Department of Health Facebook page, they are being trolls because they always argue with page admin’s points. I am the supporter as I always post a positive, supportive comment.  I consider immunization very important but I never go to antivax pages and post. Never. I support the provax, pro-science message, which is the opposite of trolling.

As for my children, what an incredibly low blow for Ms Humphries to make that comment. My children are amazing and beautiful and smart and respectful and amazing. I am incredibly blessed to have a teenager and a tweenager who still enjoy my company and both get all As and Bs in school. One qualifies as gifted and the other is a gifted artist. One plays musical instruments, volleyball, and dances jazz. The older one is on the autism spectrum and her path has not been smooth but she is one of the most incredible people I have ever known in my life and every single speedbump in our lives has led to her being the person she is and I would not change a thing. Not one single thing. She is incredible.

I had a moderate reaction to the MMR in graduate school. My arm swelled up like a tennis ball was in it and it was very painful for about a week. That is not severe but did report it to VAERS and I was told the next MMR might cause a worse reaction.  Luckily, 27 years later, I had my titers run and I am still immune!

Erin’s comment is the worst.  What kind of person thinks this of people they don’t even know? It’s astounding. I will pray for her soul.

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So, now they make fun of my wardrobe from 2015 when I testified in front of the Washington State House Committee on Healthcare at my state capital, Olympia. I wore a brand new abstract floral blouse and navy slacks. Apparently, that was not good enough for them. They didn’t recall a thing that I said but my wardrobe stood out.  [snort – you just have to laugh at this level of immaturity]

As for my weight, I am not obese. I wear a size 16 and am tall with broad shoulders. I am not as thin as a rail but my own doctor says I am fine. Why does it matter to them if I am skinny or not?  Several well known antivax advocates are quite overweight but that is not why we disagree with them.  Their weight is not the issue. Their belief that vaccines cause autism is the issue!  Focus ladies! Focus on the issues! Being pretty or not doesn’t matter!  

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Apparently, Laira does not realize her boyfriend is really just a chiropractor. He is not a medical doctor. He is not a “functional medicine doctor” because he is only licensed as a chiropractor.  I love my chiro for helping my extra straight back and neck but I am very glad he does not deviate from straightening joints and backs.  Why on earth should I consider a chiropractor knows anything at all about immunology? They are not trained in immunology. They are good for nothing except putting joints back into place.

And, again, I did not listen to all the comments from the ACIP meeting. Feel free to link me to any you want to consider.

Jaclyn, your comment is about as vile as Suzanne’s.  Seriously, in what world do you think it is acceptable to say that kind of thing?  I see beautiful children daily and help them succeed. None of them are “vaccine injured” and I certainly would never look at one of them and ever think “you are damaged.”

 

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I call a spade a spade. Antivaxers are those opposed to vaccines for reasons not based on sound science. I certainly don’t call all people on the fence about vaccines “anti” because that would not reflect their thinking. And where do I harass people? I never troll antivax pages. Ever. Also, as I pointed out earlier in this post, Chris brought up her son and I then commented. If she had not mentioned him and his issues, I would never have said a thing.

Moral: If you don’t want people to comment on your family, never mention your family.

 

I am a glass half full kinda gal and it always surprises me when people get so negative and irrational in vaccine discussions.  To me, the issues are science and safety studies and efficacy data, not personal issues like looks, what one wore, or one’s weight. If we wanted to make it personal, we could bring up a lot of well-known antivaxers who are obese, smoke, heavily tattooed, ugly, and/or look very ill. But that is beside the point. When we talk about public health, our looks are not the point. The point is what does the science tells us. If you have to deviate from the science and mock a person’s looks and comments, you have lost the debate. You are being a “mean girl.” You are being vitriolic and immature. You are showing the world you have no valid argument on your side and you are so immature that acting like a catty 14-year-old gossiping behind the backs of others is the only choice you have left.  What kind of person are you inside?

I am going to always stick to the science. There are no studies which show vaccines to have greater risks than benefits. Vaccines do not cause autism.

Seriously, these ladies are ridiculous.

 

Have a great day

 

Kathy

Mrs Antivaxer goes to Atlanta!

Some of you may already know that for antivaxers the center of the vaccine universe is the Centers for Disease Control (CDC) in Atlanta, Georgia, USA.  The mothership of the pro-vaccine movement is ACIP or the Advisory Committee on Immunization Practices. Led by Dr Amanda Cohn, of the CDC, this committee makes the official recommendations on vaccine practices to the US Government.

This week, antivaxers descended on the ACIP meeting, as part of a coordinated effort called Inundate the CDC ACIP meetings. Apparently, they believe if they attend these meetings and wake up the ACIP “sheeple,” then all will be well in the world. A lot of very active antivax mums (and one guy) attended.

 

ETA: Here is one of the videos I watched of their testimony.

 

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In this picture, you can see Denise Marie, who thinks her daughter’s teenage depression is a side effect of HPV vaccine. You can see Hillary Simpson, the #crazymothers who thinks her son’s tummy troubles are a vaccine reaction. There is Jamie Juarez who thinks her son’s autism is a vaccine reaction. Susie Corgan who also thinks her son’s autism is a vaccine reaction. Jaclyn Gallion, who seemingly has no reason to be in attendance. And so on. This is a gallery of women and one man who is a chiropractor, who decided that they needed to tell the committee their vaccine injury stories. Only, none of their stories are actually vaccine injuries. So, it is highly likely the ACIP committee members half listened politely, knowing these are #crazymothers.

SIGH

So, what did they want? They wanted to tell their stories and ask questions, only ACIP members don’t answer questions during public comment periods. So, what did they say? Well, I watched the video on the Inundate Facebook page and here is what they said:

Susie Corgan, in the sleeveless black dress in back, who is on the board of Informed Choice Washington, spoke about how her son is autistic because of vaccines. Except vaccines don’t cause autism. She asked if the ACIP members are listening to their stories?  My question is why would they listen to something irrational?

Tia Severina also has a son with autism and a daughter on the autism spectrum. She does not believe the rise in autism is due to better diagnosis. She is the mom in the red jacket in front. She believes the bad science in books saying that vaccines cause autism.  She believes genetics cause 1% of autism and the rest is environmental. She believes the vaccine safety studies are missing. She believes the cherry picking.

Next up was Teresa Berg from Michigan. She claims that we, as a society, accept ADHD, autism, ASD, speech delays, cancer, and or as normal. I am not sure where she got this idea. She believes vaccines cause all these childhood issues and doctors ignore vaccine reactions. She believes because there are no safety studies on the entire schedule then vaccines cannot possibly be safe. But there are many safety studies.

LeeAnne Johnson has two “severely autistic little boys.”  One of her children has seizures and the other has GI spasms. Of course, these can be comorbid with autism but they are not symptoms of autism. However, she believes these symptoms  are all vaccine injuries and it is “very unfair.”  She believes her children’s case is exactly like Hanna Poling‘s case and should have been compensated by Vaccine Court.

Jaclyn Gallion, of Washington State, spoke about how suicides are related to unvaccinated children who are excluded from outbreaks due to being unvaccinated. She claims that when children are quarantined they become depressed and attempt suicide.  This is really a stretch.  When you turn in a vaccine exemption form, you read that your child will be excluded during an outbreak. So, it is your responsibility, as a parent, to make sure your excluded child is cared for during the quarantine at home.  Really, her point is completely irrational. She wants us to expose unvaccinated children to outbreaks because it might help their self-esteem to not have to stay home? Good lord.

Erin Marie RN (Erin Olszewski) came from Florida feels ACIP should protect our country as their number one priority.  She was very teary when explaining that she was speaking for vaccine injured who have parents who could not attend this meeting. Her son, at 12 months, regressed into autism after MMR.  She believes ACIP is not helping people, that vaccines are not helping people.

I wonder what we can do, as a society, to help these women understand regression can happen with genetic disorders. I believe these moms need support and we need to advocate for families who are suffering while trying to help a disabled child.  If we truly supported them, perhaps they would not be so angry and blaming vaccines?

Jamie Lynn Juarez testified that her son has severe autism which she believes is really viral encephalopathy and vaccine injury. She claims to have two unvaxed healthy children and another daughter she claims is vaccine injured and recovered. She believes vaccines do injure and she claims to have testified in thousands of legal cases for vaccine injured, as a counselor.  She believes there is fraud in CDC, as per JB Handley’s book. She thinks CDC should do more studies and should prescreen babies for potential vaccine injury.

Lori Ciminelli, a retired medical assistant, spoke about how, in her time, children only got 6 vaccines and now her grandchildren get 72. (Sidebar: I am forever unsure why antivaxers think protecting children from more serious diseases is a bad thing. Also, they are very bad at math as children do not get 72 shots.) She also made some appalling statements about adults with severe needs. She asked why were there no adults in diapers in the malls when she was a child?  Well, Lori, there were few malls when you were a child and the special needs adults were in institutions. Nobody took them on day trips. They were warehoused like cattle. She also asked why there was no special education in her childhood. Well, Lori, special education laws were first enacted in the USA in 1975, that is why.  Before then, no one with any special needs was afforded any rights. Your child who had reading trouble, was failing math, was fitchety and getting sent to the Principal’s office a lot?  None of them were treated with any consideration. Your child who could not keep up with the class?  He repeated the grade or was kicked out of school. Prior to 1975, the schools did not have to teach anyone who could not keep up with their peers.

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Elijah Bunch, who’s son Christopher Bunch died recently and he blames HPV vaccine, spoke about his son and Brandy Vaughn, of Learn the Risk, spoke for him. She claims that HPV vaccine is linked to ADEM and paralysis. She claims she has 50 studies that verify her claims. She claims there are serious issues following HPV vaccination, all over the world. She claims there are 432 deaths related to HPV vaccine. She believes that any other pharmaceutical drug would have been removed from the market by now if those many deaths were related to it. She claims that pharmaceutical companies are not studying reports of adverse events and are not studying vaccine safety. She claims that HPV vaccine has caused thousands of deaths. She is a master cherry picker who does not understand chemistry one iota, so I have no doubt there is not much to her “evidence.”

Hillary Simpson, the #crazymothers, believes vaccine injury can be healed without pharmaceuticals. Note that she believes her son was injured by rotavirus vaccine. She asked a few questions. 1. Who thinks it is okay to recommend 72 doses of vaccines without doing a single cumulative study? 2. Who thinks it is okay to not do a vaccinated versus unvaccinated study so they can assess risk? 3. Who thinks it is okay that 54% of our children are suffering from a chronic illness? And 1 in 36 is autistic. 4. What are you, ACIP, doing to protect the children and the vaccine-induced autism epidemic? (note:  Hillary is a former actress and remarkably dramatic) 5. When is ACIP going to start working towards resolution of this massive problem? (big sigh from her) 6. And when are they going to stop hiding behind “we don’t know why?”  Because the #crazymothers know and they are healing their babies.

LeeAnne Anita spoke last, in my viewing. She started off with a quote from Dr Paul Offit about how one cannot really say that MMR causes autism (my take: because that is not the way science speaks) but you should get used to saying that MMR does not cause autism because otherwise, people hear a door being left open when there should not be a door left open. What Dr Offit means by this is telling people the evidence does not support vaccines as causing evidence is confusing to the average person. So, instead of say vaccines do not cause autism.  It is more simple and gets to the point. But, she believes the door has been busted open because only thimerosal has been studied in relation to autism and only MMR has been studied. So, she believes vaccines could still cause autism. She does not understand why aluminum adjuvants are used as a placebo, why hep b is given to babies, why inserts say no safety studies have been done on pregnant women, and why recommendations for vaccines are only based on pharma studies. (of course, that is completely false). She wants an immediate change to the vaccine schedule and believes that Robert Kennedy Jr is correct, as quoted in the JB Handley book, that there is fraud at the CDC.

Another thing that happened this week, in conjunction with this meeting,  is this group approached Dr Paul Offit and somehow convinced him to have lunch with them, off the record. I am shocked he did this but proud of him for making an attempt to hear their concerns.

 

 

 

 

 

 

 

 

Of course, they could not resist mocking him afterward and being nasty. They really don’t have any self-control.  During LeeAnn’s testimony, when she was quoting Dr Offit, he was caught on video a “shoot me now” gesture towards his head. #crazymother Hillary, and the others took offense.

 

 

 

 

 

 

 

It was fascinating reading all their comments to each other, all over Facebook. They eventually recognized that it is likely their testimony did nothing at all to sway the committee but they hope parents will hear them and stop vaccinating. They believe the science is on their side and all provaxers are bought by pharma. It is really quite fascinating to observe them from afar. I am quite glad I was not there in person.

 

 

UPDATE: You can find all the videos to watch here.

 

Remember to think for yourself! Vaccines do not cause autism.

 

 

Kathy

 

Provax autism mom reads JB Handley’s “Autism Epidemic” book

Yes, indeed, this pro-vaccine mom of one spectacular autistic teenage girl spent the last few days reading JB Handley’s new book, How to End the Autism Epidemic.  Please be aware this blog post is going to be very long because I want to cover everything.

 

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I hemmed and hawed about whether I should read it or not but, in the end, I decided it was worth the $10 for the Kindle version to have something to say when antivaxers post a link to it, which they are doing often lately.  The Kindle version did not have page numbers so please note that all quotes are referenced to book section but not to exact page.

Note: please excuse the wonky spacing. I originally wrote this as a Facebook file and the formatting did not copy and paste well to Word Press. I chose not to spend an excess of time figuring out how to space every paragraph identically.

Introduction

The book dives right into the story of JB’s son,  Jamison’s, 2-month well baby visit, after which his health apparently “deteriorated” and developed eczema and insomnia. He had frequent ear infections and digestive pain. By 18 months of age, Jamison apparently was more sick, not talking much, and had what they thought were odd behaviors. JB and his wife had an “excruciating” time getting him screened for autism. (apparently a long wait list is excruciating). The diagnosis of severe autism was a nightmare for JB and his wife. They “wallowed in misery” for a long time, according to the introduction to the book. Of course, thanks to my friend, The Real Truther, we know that JB’s story has actually changed a lot over the years and JB doesn’t actually have a firm timeline for Jamison’s health issues nor is JB sure what was the cause of these issues.
One thing I note about the introduction is it is mostly about JB’s personal experiences and less about anyone else’s. As we have seen with antivax autism warriors, they really do enjoy getting attention for their troubles. And, there is no comparison to what other parent’s who have disabled children feel nor to what the children feel. This is all about JB.
The introduction ends with JB and his wife taking Jamison to an integrative doctor named Lynne Mielke. At the time, she was a Defeat Autism Now! (DAN!) doctor. Dr Mielke convinced them vaccines definitely cause autism because she said she had seen hundreds of patients with the same story as Jamison and she had seen many of them improve with her DAN! protocol. They claim that starting Jamison on this protocol helped return some of his health, including eye contact. At this point, Jamison was two years old and JB and his wife had spent a lot of time on the internet “researching” and wondering why the doctors at Universities didn’t believe in DAN! protocols. JB describes how, at this time in their lives, he was very angry and spent most of his free time “researching.” This is the point, in May 2005, where he and his wife founded Generation Rescue.
It is good to note that JB at least is not completely antivaccine. He says, in the introduction, that “While I acknowledge that vaccines provide some benefit to society in reducing cases of certain acute illnesses, they also cause brain damage in some of the vulnerable kids who receive them.” Note that he is calling autism “brain damage.”

Part one: The lies about vaccines and autism

Chapter 1: there is no autism epidemic

This chapter begins by discussing Steve Silberman’s book,  Neurotribes, which JB found very annoying. I will say that I enjoyed reading this book and own it.  At the time it was published, we were just getting our oldest formally diagnosed with autism. She had always exhibited behaviors and social skills and deficits outside the norm but it was not until she was ten years old that her doctors started talking about autism. She has what we would have once called Aspergers, but today is diagnosed Autism Spectrum Diagnosis.  Thus, I am an autism mom but I will agree that my child’s path has not been easy  but I have been blessed to not have a severely disabled child.
JB counters Silberman’s arguments with data from a book called Mental Disorders and Disabilities Among Low-Income Children and he claims that since he never knew anyone with autism when he was a child and the rate has grown so much then Silberman must be completely wrong.
JB asks the question: “Where are all the adults with autism?”  I find this point of view annoying. I did know people who were “mentally retarded” when I was growing up. Why does JB deny they existed just because he did not personally know one?  People who ask this question are ignoring the changing diagnosis categories (read my “there is no autism epidemic” blog post here) Worse still, when autism rate was 1:45, Robert Kennedy Jr asked “Why isn’t one in forty-five older people you see walking around the mall, why isn’t one in forty-five wearing diapers and wearing a football helmet, and having seizures, head banging and stimming?” This is an offensive description since most all people with autism are not in diapers or having seizures and being in diapers and having seizures are both symptoms NOT of autism alone but a co-morbid condition.
In other words, JB and RFKjr are offensive and ignorant. It is also highly offensive that they assume that everyone with autism is severely disabled and requiring massive assistance to exist.
JB claims that there must be close to 5 million adults with autism, if the data is correct; however, he thinks they don’t exist. Apparently, Dan Olmsted and Mark Blaxill also published a book recently on this topic, called Denial, and JB believes that because he cannot find cases of autism like his son’s in history then they did not exist. Again, this point of view ignores the history of institutionalizing people with mental retardation, Down Syndrome, schizophrenia and other health issues, some of which we now diagnose as Autism Spectrum Disorder.
Basically, JB denies these people exist.
This quote really sums up JB’s feelings: “Unfortunately, the Good Doctor is like a guy with a small limp and a cane representing paraplegics to the world. His story is fascinating and compelling but bears little resemblance to the autism most parents, myself included, actually deal with every single day.” Because JB lives with an autistic person, he believes his son’s version of autism is the sole version. He believes Silberman fans are “romanticizing” autism while we Silberman fans understand that JB has an extremely limited view of autism. What is confusing is that his idea that autism includes seizures and diapers is not backed up by his own definition of autism: “Despite what you may have read, the definition of autism has remained remarkably consistent over time. Because autism can’t be diagnosed with a blood test, it’s diagnosed through observation, and anyone possessing enough qualities of autism has autism. The hallmarks of an autism diagnosis include early onset of symptoms (typically before thirty months), an inability to relate to others (called “social-emotional reciprocity”), “gross deficits” in language development, peculiar speech patterns, and unusual relationships with the environment.” My own child did not exhibit “gross deficits” but she definitely had peculiar speech patterns and unusual relationships with her environment and social-emotional reciprocity issues, from toddlerhood.
JB is correct that there is research showing autistics have greater incidence of epilepsy and anxiety. My own child suffers extreme anxiety.
JB concludes this chapter with some quotes from RFKjr wherein they believe that denial of an autism epidemic is the government’s way to not accepting responsibility. Strangely, he claims Brian Hooker as a source, calling him a “Simpson University epidemiologist” but Dr Hooker is, in fact, a chemical engineer who now works as a biology professor.  To remind you, Brian Hooker appeared in the film, Vaxxed, to claim his child’s autism was caused by vaccines but saw his vaccine court case dismissed because the evidence proved otherwise. 
In sum, JB and RFKjr believe that pharmaceutical company profits are at risk of collapsing if autism is proven to be caused by vaccines and the government is colluding with pharma companies to cover up this “epidemic.” “The dollar signs associated with the epidemic are so large that it’s worth billions for the prime suspects to evade accountability.” They claim Dr Paul Offit is at the top of the “denial food chain” and that repeat the oft-debunked trope that he makes millions off the rotavirus vaccine and that is why he promotes vaccine in general. (Dr Offit does not own currently any vaccine patents). Because Dr Offit is the Maurice R Hilleman Professor of Vaccinology at the University of Pennsylvania’s Perelman School of Medicine, which is a chair endowed by Merck, JB and RFKjr see conspiracies everywhere. These two also claim Dr Peter Hotez, Dr Eric Frombonne, and Dr Paul Shattuck are “industry mouthpieces with deep ties to the vaccine industry.”
So, they see conspiracies everywhere but provide no proof to back them up.
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JB makes another claim I find offensive: “Denying the autism epidemic is to deny the suffering of millions of children and their families and also to deny the exploration into the true cause so the epidemic might end.” This is so bad. Provaxers never deny anyone is experiencing health issues or suffering. We want to find the actual causes so we can treat people effectively.
JB defines his “three main arguments by deniers:
1. The diagnosis has improved. JB does not believe this is fact. He cites the 2012 Autism Congressional Hearing conversation between Congresswoman Carolyn Maloney and CDC’s Dr Coleen Boyle as evidence, which is silly. That conversation has been taken out of context so many times by antivaxers I would be rich if I had ever bet on it. Dr Boyle tries to answer the questions about what the CDC studies and is interrupted by Congresswoman Maloney and then told to send her the studies. That conversation doesn’t prove anything.
2. Autism is mental retardation reclassified. JB believes the “autism epidemic” started in the 1980s.  I debunked this here, as did Emily Willingham here.
3. The definition of autism has expanded. This is scientific fact so I am unclear as to why JB has issue with it.
JB concludes this chapter with a look at James Lyons-Weiler’s opinions on the issue of whether autism is genetic or not. (Skeptical Raptor echoes my thoughts on this guy)
JB ends this chapter with the following: “Pouring cold water on the severity of the autism epidemic inhibits the call to action we all need to find causation. It gives scientists on the fence an “out” where they can describe the autism epidemic as “up for debate.” It denies the suffering of so many impacted children, and it’s prevented a redirection of research dollars to find environmental causes. In the end, saying the autism epidemic isn’t real is simply a lie, and it’s a lie that extends the suffering of so many children.”
I am sorry but I had to roll my eyes big time here. As far as I have seen, no one denies how some people on the autism spectrum have severe issues. There is a massive amount of research going on to find causes and supports. Just because biomedical ideas are discounted doesn’t mean autism is not taken seriously. Many of us want to support and love autistics, not refer to them as damaged and try to change them.

Chapter 2: Vaccines are safe and effective.

This chapter attempts to make the point that vaccines are not safe and effective. The argument is made that since mortality (death) rates dropped after clean water and refrigeration were introduced then vaccines did not save us. But, no mention is made of morbidity or disease incidence rates. Here is an example of measles mortality overlayed with morbidity, so you can see the difference. The study from which this graph originates clearly points out how the vaccine made a huge difference in USA.
189-Supplement_1-S17-fig001
The Leicester example for smallpox is used to make the argument that vaccines did not stop smallpox. The Leicester example of quarantine is but one case but does not conclude the vaccines had no value nor that quarantine alone in all cases effectively works to eradicate the disease.   I am not sure why antivaxers persist in using this as an example. My friend at Vaxopedia explains.
A few more claims from JB:
JB then goes on to state how he is a herd immunity denier.  Herd immunity is fact, like gravity.
JB believes NCVIA indemnifies vaccine makers from responsibility. The reality is that vaccine court is easier to navigate than claims court.
Other countries give fewer vaccines, JB argues but he is not correct. I blogged about this point a while ago.
JB argues that there will always be outbreaks but the reduction in the rate of measles and other VPDs, post vaccination, counters this claim. The Pink Book is the best source on American disease rates pre and post vaccination.
JB claims that because the majority of mumps patients in a Harvard University outbreak, a few years ago, were vaccinated then vaccines must not work. But, there were 41 cases out of tens of thousands of students, nearly 100% of whom are vaccinated. So, that is a vaccine win. More students would have been sickened if not for vaccines.
JB believes vaccine safety testing is inadequate. He does not make a valid case here. Vaccines are tested much more strictly than other drugs. He further claims that adverse event rate is closer to 1:50 and bases that on a Harvard Pilgrim study but that is one health center and we know that nearly all adverse event reports are for mild reactions, none of which are a reason to avoid future vaccines. He then claims adverse events are not studied well and multiple doses of vaccines are not studies, neither of which are true. (link studies here). He goes on to cite a very old study of the DTP vaccine from Guinea-Bissau which was only published recently. This is classic cherry picking. There is absolutely no reason to consider this one study more valuable than the huge body of immunization science literature. He further cites a Dengue vaccine issue that is unique. Again, this is not a reason to avoid vaccines. And, he writes about a Canadian flu vaccine study that seemed to indicate more flu vaccines might lead to less efficacy.
Then, we have a section of this chapter devoted to Gardasil. JB pays no attention whatsoever to any studies which prove this vaccine safe and efficacious.
Finally, we have some links from JB to studies showing vaccines might be linked to autoimmune disease. He cites the oft-cited trope about the “textbook” that is actually used in not one medical school on earth, called Vaccines and Autoimmunity, as proof that vaccines cause autoimmune disease. This is not a valid source!
JB is a cherry picker. He posts only studies that make his point and does not care if they are valid or replicated. In my opinion, this is a form of lying. He is lying by omission in that he fails to report the vast plethora of studies which prove his points wrong.
At this point, I am getting very annoyed at JB’s cherry picking. He even has a section devoted to doctors who are questioning vaccines, as if that tiny group of shysters is a reason to avoid vaccines.
cherry-picking

Chapter three: the science is settled

JB claims that because only thimerosal has been studied, with regards to autism, that vaccines cannot be ruled out as causing autism.  He cites some opinion statements from antivax persons as proof the studies looking at thimerosal and vaccines are faulty. But, he does not prove we have any reason to validate these opinions. Again, he has cherry picked points that confirm his own biases. He then goes on to bring up the “whistleblower” Dr William Thompson, which is so ridiculous I don’t know whether to laugh or cry. (read the facts of this story here ). And the Thorson trope! Read more on that here. Goodness, JB is grasping at thin straws.
JB devotes the last part of this chapter to a study from Carolyn Gallagher and Melody Goodman at SUNY Stony Brook which looked at rates of Hepatitis B vaccine and special education rates.  This study correlated hep b vaccine rates with rates of special education in American boys. They did not, however, analyze how special education services expanded during the time period. Correlation does not equal causation.
JB then discusses the twice retracted Mawson study as if it is valid. (OMG!) This study has been retracted twice for shoddy methods and not validating data.
At this point, I am seriously wondering how JB looks himself in the mirror daily and takes himself seriously. But, I digress….

Chapter 4: The reward is never financial

This chapter begins by discussing the custody battle between Michigan mother Lori Matheson and her ex-husband, which centers on vaccination issues. JB claims that Dr Stanley Plotkin was supposed to be a witness but then recused himself and, in the meantime, the lawyer for the mother presented a great deal of proof that her son should not be vaccinated. Having followed this case, I think JB is living in LA LA land. I did not see the attorney expose “more truth about vaccines and the vaccine industry in one document than I’ve ever seen.” JB spends a great deal of this chapter on the Plotkin deposition, even claiming the mother’s attorney decimated Dr Plotkin. No proof is given for this point. The attorney, Mr Siri, asked Dr Plotkin about payments received from pharmaceutical conpanies over the years but he never proved this in any way makes vaccines ineffective or dangerous. It was a very strange line of questioning, based solely on conspiracy theories. Much ado is made of the clinical trials for vaccines not using a saline placebo in all trials, but no scientific explanation is offered as to why this is an issue. Dr Plotkin is asked many questions about clinical trials but none about post-licensure safety studies. A great deal is made about the limitations of the pertussis vaccine, but no explanation is given as to why this is a reason to avoid vaccines. Human diploid cells are discussed at great length but no comparison is made between child and infant death rates before vaccines as compared to the legal abortions of the fetuses which cells are now used to make vaccines and save billions of lives. Dr Plotkin is asked some questions about human experimentation as if vaccines are some nefarious plot to experiment illegally on humans.
The whole thing is disgusting. No wonder Plotkin pulled out. The questions have no bearing whatsoever on the father’s right, in this case, to have his child vaccinated.
Then, JB compares tobacco to vaccines. At this point, my eyes rolled so hard I got dizzy and needed to take a break.  Good grief.
peanuts-coaster-charlie-brown-good-grief-a
At this point, we get to his thesis: “If all parents believed they had a one in thirty-six chance of their child developing autism from vaccines, the vaccination rates would plummet. And if the pharmaceutical industry were proven to have created an epidemic of autism of several million children worldwide, the economic liability would be astronomical. Just doing some basic math, the average cost of lifetime care for a person with autism is estimated to be $2.4 million dollars.”
JB then spends some time trying to prove Andrew Wakefield is innocent and correct about MMR and again my eyes rolled so hard my BPPV was resurrected. Kidding/not kidding.

End part one

Part II – The truth about vaccines and autism

Chapter 5- Emerging Science and Vaccine-Induced Autism

Chapter 5 begins boldly: “Since 2004 there have been eleven groundbreaking discoveries in separate but related scientific fields that, taken together, reveal the cause of autism. Because of this science, we now know that autism is created by immune activation events in the brain during critical phases of brain development, typically by the time a child is thirty-six months old and that these immune activation events in the brain can be triggered by the aluminum adjuvant in vaccines.”

 

Let us go over the discoveries, but please note that I could probably write a post on each of these discoveries. I will endeavor to link you to information about each but there is no way I can produce a complete list for each.  I am but a humble special education teacher and mom. Please link in comments to more information, if you have it, and I will update this post. 
1. JB believes that Dr Carlos Pardo-Villamizar discovered “autism brains are permanently inflamed.” However, it appears that JB has cherry-picked parts of this study that suit his whims without regard to what it is really stating. The myth that this study supports the idea that vaccines cause autism reached the study author who issued a statement in 2008. “Another issue that is important to clarify is the notion that neuroinflammatory responses mediated by innate responses and neuroglial activation are directly associated with injury. At present, we are not able to conclude that these neuroglial reactions are deleterious for the central nervous system.” This study does not conclude vaccines cause autism, according to one of the main authors.
2. Dr Paul Patterson discovered that immune activation events lead to autism. They found that, in mice, immune activation led to mice with autism-like behaviors. However, they noted that mice models cannot be extrapolated to humans. And, they focused on the relationship between mothers who have infections during pregnancy being at higher risk for having an autistic child. He wrote several papers on how infections during pregnancy can lead to a higher risk of having an autistic child or a schizophrenic child. Note there is nothing about vaccines here. Again, this is not showing vaccines cause autism.
3. The cytokine interleuken-6 is the key biomarker for immune activation. This is again about Patterson but, again, Patterson was not studying vaccines. He was studying infections. Here is a good read about Patterson’s work.
4. Immune activation can take place after birth. This appears to be a theory by someone who hides behind the online moniker “Vaccines Papers” and nothing more. No data, no studies published, just a thought, which is not valid in and of itself.
5. Aluminum in vaccines can produce behavior and motor function deficits. Here, JB brings up the work of Christopher Shaw. Shaw is a Canadian scientist who’s work is funded by the Dwoskin Foundation. Dr Shaw primarily works with Dr Lucija Tomljevnovic at the University of British Columbia. Their interest in aluminum adjuvants coincides with getting grants from the Dwoskin Foundation, aka the Children’s Medical Safety Research Institute. These two have had a few studies retracted for being badly done. Also, the World Health Organization published a page about them, pointing out the flaws in their methods. In sum, their work does not lead us to conclude vaccines cause autism
6. Aluminum adjuvants can be carried to the brain by macrophages. This study is well explained by Scientist Abe over at the Blood Brain Barrier Scientist. Abe is an actual scientist in neurobiology who teaches at an American university. In his post, he also discusses several of the previous “discoveries.” It is a good read. In sum, Gherardi may have stumbled upon something genetic in the French that makes them more susceptible to immune issues after vaccines. It is only, thus far, something seen in France. Or, it could be a correlation. Not enough data to leap to the idea that vaccines cause autism.
7. Aluminum adjuvants stay in the brain longer than anyone realized. This is again about Gherardi and his ideas that aluminum adjuvants can travel to the brain. But, there are serious flaws and bias issues in his work. First of all, like Shaw, he has funding from CMSRI, a group clearly devoted to finding a link between aluminum and autism. That is their goal which makes any research they fund completely tainted by bias. This is also a very poorly done study. Read here to learn about the flaws and questions. Again, this is not a reason to think vaccines cause autism.
8. Small doses of aluminum adjuvants are dangerous. This is apparently about something Vaccine Papers noticed. I am really quite shocked that JB would think that citing the opinion of a person who hides behind a pretend name is valid. We have some ideas who might run Vaccine Papers website but we don’t have confirmation. All we know is he likes to read studies in his own wonky way and then argue a lot about it online. I cannot fathom why we should consider his opinion on this autism matter. But, this is again a mouse study from the Gherardi group in France and we have already discussed their limitations. There is no reason to give this study any validity. Here is an excellent explanation as to why antivaxers have turned their sights on aluminum as the cause of autism and why the theory is bogus.
Side note to the discovery list is the interest JB takes in the opinion of Vaccine Papers. Many times I have debated VP and noted that nobody cares if he does not like the Dr Rober J Mitkus, who wrote the paper “Updated Aluminum and Pharmacokinetics Following Infant Exposures Through Diet and Vaccination.” (link here). VP feels this paper is flawed and gets upset that Mitkus ignores the aluminum studies by Shaw, Exley, Gherardi, etc. In sum, JB and VP both are upset that the poorly done studies they like are not given attention by Mitkus.
9. Aluminum causes immune activation in the brain. This is a rat study where aluminum may have increased inflammation. Again, not related to vaccines, not about humans.
10. Hepatitis B vaccine causes immune activation in mice. This is a study from China. I remember when JB blogged about this study. This is yet another study on rodents that proves nothing. What is interesting is how the ideas in this study connected to misunderstandings about the work of Patterson and Pardo. And, this study overdosed rats, so it cannot compare to humans and vaccines.
11. High levels of aluminum found in autistic brains. This study is by Christopher Exley and it is twice affected by conflicts of interest. Exley is not only on the board of the journal which published it but he is also on the board of CMSRI, the group which funded it! And the study is terrible. Basically, Exley got some precious brain samples from deceased persons with autism. We don’t know how they were exposed to aluminum but he analyzed brain samples for it. His data was all over the map so he averaged it and came up with his idea that autistic brains are smothered in aluminum. Hardly! This study has been discussed here and here and here and does not show any link between vaccines and autism.
JB goes on to pronounce these eleven discoveries “light a clear path to autism.” I feel sad for JB. Or I might if he was not such an angry man who is incredibly rude to anyone who gets in his path. However, I do feel sad for people who will read this book and take him at his word and not read what the studies really say. They certainly do not indicate vaccines cause autism. And I am actually quite shocked JB used Vaccine Papers as a source throughout this book. Really bad, JB. That is not a valid source.

Chapter 6: The Clear and Legal Basis that Vaccine Cause Autism

Chapter 6 is about what JB thinks if the legal basis for vaccines as the cause of autism. He writes “In late 2016 two scientists, in legal depositions, affirmed everything I could have hoped for, and more. And not just any scientists, but Drs. Andrew Zimmerman and Richard Kelley, arguably the two leading mainstream autism scientists in the world. Their intimate relationship with the “vaccine court” almost ended the autism epidemic in 2009, and their ongoing willingness, to tell the truth, will likely contribute to the ending, I hope very soon.” This relates to the case of Yates Hazelhurst, an autistic young man whose parents have instigated three lawsuits to prove vaccines caused his autism. They have lost the first two. The first was in “vaccine court,” where Yates’ case was one of the Autism Omnibus cases. You can read his case here https://www.autism-watch.org/omnibus/hazlehurst.pdf and you can learn more about the Autism Omnibus here. http://www.immunize.org/catg.d/p4029.pdf In a nutshell, in 2007, three special masters in the US Court of Federal Claims, heard three test cases selected by a group of petitioners who all believed their children were made autistic by vaccines. The Hazelhurst case was one of them. In each of these cases, the special masters rejected the causation theory. In other words, the evidence did not convince them vaccines cause autism.
In this chapter, JB outlines how he believes something Dr Andrew Zimmerman stated on record during another vaccine injury case, that of Hannah Poling, lends credibility to the argument that vaccines cause autism. It does not. The Poling case was unique. The special masters have written, “In Poling v. HHS, the presiding special master clarified that the family was compensated because the Respondent conceded that the Poling child had suffered a Table Injury–not because the Respondent or the special master had concluded that any vaccination had contributed to causing or aggravating the child’s ASD.”
An excellent explanation of the concerns about the Poling case and the facts can be found here.
JB also brings up, in this chapter, the idea that there are more cases where children with autism have won vaccine injury claims. This is partly false. There are children with autism who have had their vaccine injury claim approved but not because of autism. They have won a claim of vaccines causing something else, something on the vaccine injury table. It is obvious JB wants very badly for vaccines to be a cause of autism, but no vaccine causes autism claims have even been won in “vaccine court.” Here is a good explanation. Also, here.
The rest of chapter 6 is quotes from dialogues between attorneys and two doctors, Dr Andrew Zimmerman and Dr Richard Kelley. Thanks to my friend, Dorit, I was able to read the deposition of Dr Zimmerman myself.  Apparently, JB has copies of the depositions these doctors gave as part of the lawsuit the family of Yates Hazelhurst has filed against his then pediatrician for not being aware that vaccines could cause autism. According to JB’s account, these two doctors can confirm that Yates had a mitochondrial disorder and, thus, vaccines caused his autism. In fact, JB states that “these depositions confirm their opinions that Yates Hazlehurst—remember, one of the original test case children in the OAP—had the same mitochondrial deficit that Hannah Poling had, and that vaccines caused his autism.” JB believes that, had this evidence been presented during the Autism Omnibus hearings, “the current state of the autism epidemic would be very different.”
Who are Drs Zimmerman and Kelley? Dr Zimmerman is a pediatric neurologist practicing at UMass Memorial Medical Center and he is also a faculty member at University of Massachusetts Medical School. He is the scientific advisor at N of One. Dr Kelley is the Director of the Clinical Mass Spectrometry Laboratory and the Division of Metabolism at Kennedy Krieger Institute. I am not sure if they are “two of the most respected autism scientists in the world,” as JB believes, but they are definitely involved in autism research, albeit on the biomedical side. Both have had their research summarized by Dr Vincent Ianelli, here.
The dialogue at the end of chapter 6 summarizes the depositions of both doctors, wherein they lay out how they believe Yates Hazelhurst suffers from mitochondrial disorder and vaccines caused his autism. Key points, according to JB, are that Dr Kelley believes upwards of 40% of autistics have mitochondrial disorder and that Dr Zimmerman believes many physicians hold the opinion that vaccines cause inflammatory response that leads to autism. Zimmerman is quoted as stating “People who work in the field of autism see, commonly see a relationship between infection, inflammation, and onset of regression.” Further, he believes that vaccines cause an inflammatory response which then leads to regressive autism, particularly in children with mitochondrial disorders. Dr Zimmerman concludes that the research is still on-going but he foresees that, in the future, our understanding of metabolic disorders will enable us to prevent regressive autism. In Dr Kelley’s deposition, he agrees that there is research showing vaccines can cause autism but is not accepted by the “very authoritative groups who say there is no proven association in large cohort studies.” Dr Kelley goes on to add that he believes the “cdc whistleblower” is real because the CDC is “clever in how they publish data to avoid public attention that there is an association.” And, he believes that because vaccines cause inflammation, multiple vaccines at once can cause deterioration.
Having read the deposition of Dr Zimmerman, I am appalled at how JB cherry picks only the parts he likes.  Dr Zimmerman is pro vaccine and even vaccinates his patients.
JB does note that neither Dr Kelley nor Dr Zimmerman conclude that all vaccines cause autism. Furthermore, if you read the actual deposition, Dr Zimmerman explains how he continues to vaccinate, even in children with mitochondrial disorders, as he understands the benefits outweigh the risks. JB cherry-picked only the parts of the deposition that suit his argument.
Dr Zimmerman also believes autism is primarily a genetic disorder. He goes further and states he does not agree with the parents of his patients when those parents believe vaccines caused autistic regression. He further explains how he the Yates Hazelhurst medical records show no signs of regression, as he reads them, and encephalopathy is a separate condition from autism and “mitochondrial autism” is not a term recognized as valid. To me, these points Dr Zimmerman makes are important as they contradict JB’s cherry-picked deposition comments.
Continuing with the deposition, Dr Zimmerman is prompted to testify that Yates was never diagnosed with mitochondrial disorder until recently.

Chapter 7 The Critical Mass of Parents all saying the same thing

This chapter is primarily about JB’s frustration that parents are not taken at their word when they describe what they perceive as “vaccine injuries.” He cites a study called “Validation of the Phenomenon of Autistic Regression Using Home Videotapes,” as proof that early regression exists and parents should be taken at their word. But, the study actually made a very important conclusion which JB ignores: “While we cannot be certain from these data that children with autistic regression were developing entirely normally before the regression occurred, the results of the present study suggest that at least some children with autism do not display prototypical impairments in joint attention, such as a lack of declarative pointing, nor do they display obvious delays in their use of language at the end of their first year of life. Although these core autism symptoms were not observed at age 12 months in the present study, it is possible that the infants with regression did have other types of unusual behavior before the regression occurred.” No one disputes that children can regress. The issue is “do vaccines cause the regression?” This study does not lend to JB’s argument.

Part Three: A reckoning to end the epidemic

Chapter 8: They would have told us

In this chapter, JB tells us about how Robert F Kennedy, Jr got involved in vaccine politics and how immunization advocacy groups are basically all shills for big pharma. He compares vaccines to lead paint and cigarettes. JB’s point is that the truth, in his opinion, is being hidden by corporate interests.  JB believes the NCVIA indemnifies vaccine makers from liability and safety testing of vaccines is inadequate. Readers know, from reading my blog and others, that these points are false.  JB also believes that more and more parents begin to report regression after vaccine appointments in the mid- to late 1990s, the CDC responded by publishing studies to quash concern. This is an unproven conspiracy theory.  Further, he thinks that when British doctor Andrew Wakefield raised concerns about the MMR vaccine in 1998, a kangaroo court strips him of his medical license, and the ensuing media frenzy morphs into a defense of the entire vaccine schedule and an attack on anyone who reasonably questions it. This is false.

JB further goes over, again, the points he has made in the previous chapters.

Chapter 9: Next Steps: a twelve-point proposal

In chapter 9, JB outlines how he thinks vaccines cause all the problems in our children, from ADHD to learning disabilities, anxiety, allergies, and more. To JB, vaccines are the reason 13% of American children have special education plans. His plan, to solve this issue, is to follow the advice of his family’s pediatrician, Dr Paul Thomas. These two believe children should be vaccinated much less and, if we do that, we will see much less autism, better-behaved children, and fewer children with special education needs.
This is their plan:
  1. Immediately reduce the number of vaccines given to children. He believes children should get only DTaP, HIB, polio and MMR and they should get no vaccines until 12 months of age.
  2. Children should only be vaccinated if healthy.
  3. Separate MMR into three single shots
  4. Substitute titer tests for booster shots
  5. Screen vulnerable children for genetic vulnerabilities.
  6. Scrap the Interagency Autism Coordinating Committee, as they are too mainstream.
  7. Remove vaccine safety from the CDC.
  8. Scientists who know vaccines cause autism should speak as one.
  9. A congressional hearing should be held on the 83 autism cases supposedly linked to vaccines, as described in a paper by Mary Holland.
  10. Dr William Thompson should be compelled to testify.
  11. The drug suramin should be accelerated through the approval process.
  12. The AAP needs to pay more attention to the biomedical doctors.

At this point, I am tired of reading debunked antivax and autism warrior tropes.  None of these ideas are valid nor do JB’s ideas give us any reason to even consider them valid.

Chapter ten: Treatment and Recovery

 

In this chapter, JB outlines how biomedical treatments can recover children from autism and recommends various treatments and books, including the drug suramin, drinking silica mineral water to detox aluminum from the brain, eating a ketogenic diet, healing the microbiome, and taking nutritional supplements.
Sigh
Epilogue: wherein JB details how he feels guilty for depriving his son a normal life.
I am not tired. This book was exhausting to read if only because it is ableist and unscientific and repeats all the tropes JB has written about at Age of Autism and his own multiple blogs. I really feel sad for parents who take him seriously. There is no good science here. We know some children regress because of age, not vaccines. Autism is not the only developmental issue that causes regression. It is offensive and ignorant of JB to ignore the other developmental issues, like Prader-Willi and Krabbe and Duchenne’s Muscular Dystrophy, all of which cause children to change late in infancy to early childhood.
Sometimes, I feel sorry for parents who have children needier than my own.   Then, I get upset at them and think about M and D and C and D and K and Chris and my other friends who have autistic children far needier than my own but THESE LADIES DO NOT BLAME VACCINES AND THEY DO NOT WALLOW IN SELF PITY.   They don’t feel they got dealt a bum hand and act sorry for themselves. They raise their spirits, advocate for their children, use sound medicine and science to care for them, and pretty much metaphorically flip antivaxers the finger for being selfish drama queens and kings.
To you, C and M and D and D and K, I send you big fat internet hugs. And especially to Chris.  Screw JB.
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Remember to always think for yourself,

 

Hugs from Kathy!

Antivaxers bring up Hannah Poling and vaccine safety, AGAIN

Yet again, antivaxers are bringing up the Hannah Poling vaccine injury case as proof vaccines cause autism. This time, it is because JB Handley has published a new book and he has decided that the attorneys for the government admitted that vaccines cause autism and, therefore, all the Autism Omnibus cases are wrong and every child who has autism deserves compensation for a vaccine injury.

Except he is wrong.

 

del and jb

It all started with JB Handley’s appearance on Del Bigtree’s show last week to promote his new book. I watched this 90 minute episode so you don’t have to. Guests included JB Handley, Jenny McCarthy, Rolf Hazelhurst, Robert Kennedy Jr, with Del Bigtree hosting. I will post some links at the bottom in case you want to learn more about these people. 

Here’s my summary:

JB – my book is revolutionary, blah blah
Jenny – I love JB
Rolf Hazelhurst and RFKjr discuss Poling case.
Del uses paper people to illustrate how Autism Omnibus hearings work.
Rolf says that dept of justice attorneys on his case lied about link between mercury and autism and MMR and that is the fraud. 

The end.

 

This is what they are excited about. This is a screenshot from the video. Mr. Matanoski and Ms. Ricciardella are attorneys who were involved in the Autism Omnibus hearings on the government’s side. Wiki actually has a really good explanation of these hearings, if this is new to you.

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Del and JB, et al, think Matanoski and Ricciardella were lying when they made the above statement because Hannah Poling’s family was awarded compensation for vaccines injuring her and she is autistic. But, she was not awarded compensation for autism, a fact which Del and JB, et al, clearly refuse to understand. Here is the footnote from a more recent vaccine injury case, that of Brian Hooker:

I am well aware, of course, that during the years since the “test cases” were decided, in two cases involving vaccinees suffering from ASDs, Vaccine Act compensation was granted.
But in neither of those cases did the Respondent concede, nor did a special master find, that there was any “causation-in-fact” connection between a vaccination and the vaccinee’s ASD. Instead, in both cases it was conceded or found that the vaccinee displayed the symptoms of a Table Injury within the Table time frame after vaccination. (See Section I above).

In Poling v. HHS, the presiding special master clarified that the family was compensated because the Respondent conceded that the Poling child had suffered a Table Injury–not because the Respondent or the special master had concluded that any vaccination had contributed to causing or aggravating the child’s ASD. See Poling v. HHS, No. 02-1466V, 2011 WL 678559, at *1 (Fed. Cir Spec. Mstr. Jan. 28, 2011) (a fees decision, but noting specifically that the case was compensated as a Table Injury).

Second, in Wright v. HHS, No. 12-423, 2015 WL 6665600 (Fed. Cl. Spec. Mstr. Sept. 21, 2015), Special Master Vowell concluded that a child, later diagnosed with ASD, suffered a
“Table Injury” after a vaccination. However, she stressed that she was not finding that the vaccinee’s ASD in that case was “caused-in-fact” by the vaccination–to the contrary, she
specifically found that the evidence in that case did notsupport a “causation-in-fact” claim, going so far as to remark that the petitioners’ “causation-in-fact” theory in that case was “absurd.” Wright v. HHS, No. 12-423, 2015 WL 6665600, at *2 (Fed. Cl. Spec. Mstr. Sept. 21, 2015).

The compensation of these two cases, thus does not afford any support to the notion that vaccinations can contribute to the causation of autism. In setting up the Vaccine Act
compensation system, Congress forthrightly acknowledged that the Table Injury presumptions would result in compensation for some injuries that were not, in fact, truly vaccine-caused. H.R. Rept. No. 99-908, 18, 1986 U.S.C.C.A.N. 6344, 6359. (“The Committee recognizes that there is public debate over the incidence of illnesses that coincidentally occur within a short time of vaccination. The Committee further recognizes that the deeming of a vaccine-relatedness adopted here may provide compensation to some children whose illness is not, in fact, vaccine related.”

 

As you can clearly read, the Poling case does not lead to the conclusion that vaccines cause autism.  Therefore, there is no fraud. Vaccines do not cause autism. There is no autism epidemic. There have been many, many vaccine safety studies done in the USA in the last 30 years. There are many vaccine safety studies done with saline placebo.  

 

Remember: Del Bigtree lies. His friends lie. Everything they try to say about vaccines is a lie.

 

The characters

Who is JB Handley? He’s this guy who thinks his son’s autism was caused by vaccines and he never met a bad study he didn’t love. He ignores everything contrary to his view.  Here are a few blog posts about him.

https://sciencebasedmedicine.org/j-b-handley-versus-vaccine-science-again-not-surprisingly-j-b-loses/

https://respectfulinsolence.com/2018/04/06/old-guard-antivaccine-activist-j-b-handley-loses-best-platform/

My friend, the real truther, put together a video on JB

Rolf Hazelhurst is another guy who thinks his son is autistic because of vaccines. He has gone thru vaccine court, and lost, and tried to sue the pharmaceutical company and also lost. Last I heard, he was trying to sue the doctor who gave his son the vaccine and Robert Kennedy Jr was one of his attorneys.

Link to his vaccine court case: https://www.autism-watch.org/omnibus/hazlehurst.pdf

Robert F Kennedy Jr has lately taken up a very distorted view of vaccines and has lumped them together with his environmental causes.  Good read about him here: https://www.scientificamerican.com/article/how-robert-f-kennedy-jr-distorted-vaccine-science1/

Jenny McCarthy is a former actress/playmate who founded Generation Rescue with JB. She claimed her son was autistic but healed but many think she is not telling the truth about his health.

Del Bigtree is, well, Del. I have written about him often. You can read here and here and here.

Remember to always think for yourself. Always verify claims. Never take youtube videos as fact.

 

Kathy

There are no vaccine studies with saline placebo?

Are there really no vaccine studies done with a saline placebo? This is a common comment from antivaxers. They think vaccines cannot possibly be safe unless they are tested against an inert substance, aka the saline placebo, and there are none in existence. Therefore, vaccines are BAD.

 

saline-di-trapani

What is a placebo and what is a saline placebo?  A placebo is a harmless pill, medicine, or procedure prescribed more for the psychological benefit to the patient than for any physiological effect. Saline is something impregnated with salt. A saline placebo is basically a dose of salty water in lieu of a drug. So, the idea is that one group of study participants should get the vaccine while the other groups has a shot of salty water and neither group knows who got which. This is what is meant by double-blind, saline-placebo.

The World Health Organization has a great document explaining how placebos work and why certain substances are chosen for vaccine trials.

“Randomisation and the use of placebo interventions are designed to control for confounding effects, such that significant differences in disease incidence or adverse effects between the vaccine and control groups can likely be attributed to the vaccine. However, randomised, placebo-controlled trial designs often raise ethical concerns when participants in the control arm are deprived of an existing vaccine. Furthermore, testing a new vaccine against placebo is scientifically and ethically fraught when the hypothesis being tested is whether an experimental vaccine is more efficacious than one already in use in the same or in other settings.”

WHO goes on to detail how it may be unethical to deprive a study participant of a vaccine when an efficacious one exists. Meaning, if they are testing a new vaccine it would be unethical to test it against saline when an older, proven safe version exists. So, they can use the older version as the placebo and, therefore, not deprive the study participant of the protection. It is also considered ethical to use an adjuvant in lieu of a vaccine when the vaccine being studied has that adjuvant in it. So, you can use an aluminum adjuvant as a placebo if the adjuvant has been around enough to have been studied for safety. This is a controversial topic, with some feeling that aluminum adjuvants don’t have a proven safety record to use as a placebo.  That is a topic for another blog post. This one is focused solely on saline placebo.

“Between these two poles, the use of placebo controls in vaccine trials may be justified even when an efficacious vaccine exists, provided the risk-benefit profile of the trial is acceptable. “

The rest of the document sets out a “framework sets out the conditions under which placebo use is clearly acceptable and clearly unacceptable in vaccine trials.”

That being said, this does not mean there are no vaccine studies which use a saline placebo. Many clinical trials use a saline placebo. Read inserts to learn more. And, PubMed, the online database of scientific studies organized by the USA’s National Institutes of Health, has many listings for vaccine studies which use a saline placebo.

Here are some vaccine studies which used saline placebo:

https://www.ncbi.nlm.nih.gov/pubmed/25371534
https://www.ncbi.nlm.nih.gov/pubmed/29443825
https://www.ncbi.nlm.nih.gov/pubmed/29239682
https://www.ncbi.nlm.nih.gov/pubmed/29217375
https://www.ncbi.nlm.nih.gov/pubmed/28720281
https://www.ncbi.nlm.nih.gov/pubmed/28522338
https://www.ncbi.nlm.nih.gov/pubmed/28498853
https://www.ncbi.nlm.nih.gov/pubmed/28376743
https://www.ncbi.nlm.nih.gov/pubmed/27895921
https://www.ncbi.nlm.nih.gov/pubmed/26411885
I could go on. This was from only the first two pages of my PubMed search.

 

So, as you can see, there are very important reasons why a scientist might not use a saline placebo in a vaccine study but there are also many vaccine studies which do use a saline placebo. As usual, antivaxers are conveying misinformation. In fact, my online friend, Mike, came up with this and I turned it into a meme. This is exactly what they do, goal shifting!

no true scotsman

 

Remember to always verify claims!

 

Kathy

This post is dedicated to Bernadette for always giving me great ideas for blog posts

THE ADULT (ANTI) VACCINE PLEDGE

This is the latest viral list coming from antivaxers. It has gone viral on Facebook this week.  Let’s dissect these claims, shall we?  My comments are in blue.  Original comments are in black. 

2015 Adult Combined Immunization Schedule - United States

I Pledge to Follow the CDC’s Recommended Adult Vaccine Schedule and believe the following:

Belief is defined as trust, faith, or confidence in someone or something or an acceptance that a statement is true or that something exists. Science, on the other hand, is the intellectual and practical activity encompassing the systematic study of the structure and behavior of the physical and natural world through observation and experiment. Do you see the difference? Science is not about belief. IT is about concrete data collected from the systematic study. 

1. I believe that vaccines are safe and effective, and I am fully aware that vaccinating can cause: Lupus, Multiple Sclerosis, Insomnia, Eczema, Allergies, Influenza, Vertigo, Arthritis, Earaches, Anaphylactic Shock, Bronchospasms, Multiple Neurological Issues, Vasculitis, Seizures, Myalgia, Fainting, Encephalitis, Thrombocytopenia, Hair Loss, Meningitis, Measles, Anemia, Agitation, Apathy, Hemorrhaging, Deafness, Tumors, Chickenpox, Tremors, Dermatitis, Alzheimer’s, SIDS, Herpes, Thrush, Pneumonia, Death and Many other Diseases.

I have not seen any evidence vaccines cause most of the things on that list. Certainly, anything can cause anaphylaxis but hair loss? Apathy? Deafness? Thrush? Are they kidding?  Here is the list of what vaccines actually cause. https://www.cdc.gov/vaccines/vac-gen/side-effects.htm

2. I believe that vaccines are safe and effective. However, in the case of injury or death, I am aware that I can NOT sue the vaccine manufacturer if the vaccine falls under a category of vaccines recommended by the CDC to children or pregnant women. I believe NOT being able to sue the manufacturer is justifiable and that any claim I may have will go before the Vaccine Injury Court which has already awarded $3.7 Billion to vaccine injured individuals.

Actually, according to the USA’s NCVIA (vaccine injury act), you can sue pharma companies for certain issues. But, why should vaccine makers be responsible for rare reactions? It is not their fault someone has a rare reaction. I didn’t get to sue anyone when Sulfa drugs caused me anaphylaxis or when Cipro caused me major GI upset.  Nope. I am just noted as allergic to both these antibiotics in my medical chart. The no-fault vaccine court process has compensated 6000 claims of injury, in USA, since 1986, during which time we have given out more than 5 billion doses of vaccines. That makes risk of vaccine injury literally 0.000011%.  

https://www.hrsa.gov/vaccine-compensation/data/index.html

3. I believe vaccines do not cause autism, despite a 2015 CDC-commissioned White Paper in which Subject Matter Expert Stanley Plotkin acknowledged that autism spectrum disorders, developmental disorders, learning disorders, and 41 other serious outcomes are BIOLOGICALLY PLAUSIBLE outcomes from exposure to the CDC schedule. I acknowledge the multiple vaccine-induced autism cases already awarded in court and the thousands of cases in line.

Not sure which paper they are referring to but Plotkin wrote a paper in 2009 wherein he specifically stated vaccines do not cause autism. “

Twenty epidemiologic studies have shown that neither thimerosal nor MMR vaccine causes autism. These studies have been performed in several countries by many different investigators who have employed a multitude of epidemiologic and statistical methods. The large size of the studied populations has afforded a level of statistical power sufficient to detect even rare associations. These studies, in concert with the biological implausibility that vaccines overwhelm a child’s immune system, have effectively dismissed the notion that vaccines cause autism. Further studies on the cause or causes of autism should focus on more-promising leads.”

https://academic.oup.com/cid/article/48/4/456/284219

4. I believe that vaccinated people don’t spread disease even though manufacturers, CDC, and FDA studies all show that most vaccines are not designed to prevent colonization and transmission, and live vaccines can shed, and protection wanes, and there are non-responders, and infections like mumps and whooping cough are being spread in and by fully vaccinated populations. I am aware that over 90% of people involved in “outbreaks” are vaccinated.

Again, I am not sure where they are getting these ideas. According to CDC, 80% of measles patients in USA are unvaccinated or no history of vaccine, since 2000.

   https://www.cdc.gov/measles/pubs-mmwr.html

As for vaccines shedding, that happens very very rarely and has never happened with MM or R. 

https://vaxopedia.org/2016/09/17/shedding-and-vaccines/

5. I believe that vaccines are so safe and effective that injecting aborted fetal DNA fragments into my body is totally acceptable, even though in other areas of science where human DNA is used insertional mutagenesis is recognized as a major problem. I believe this practice trumps other religious beliefs and it is our constitutional right to choose.

The constitution does not give them a right to chose not to vaccinate.  As the six lawsuits against California’s vaccine bill, SB277, have all lost their cases, clearly vaccine mandates which disallow religious exemptions are not unconstitutional. 

http://www.skepticalraptor.com/skepticalraptorblog.php/california-sb277-vaccination-law-litigation-update-1/

The DNA argument is silly. It comes from a single, self-published study from Theresa Deisher, of Seattle, WA. Deisher is a pro-life activist whose work has not been replicated and was self-published in a very low-brow journal.  There is no reason to believe there is human DNA in vaccine nor that this causes any concerns. We eat, breathe, drink and are injected with foreign DNA all day, every day, for our entire lives. Having sex with men means you are injected with foreign DNA.  This argument is irrational. 

https://respectfulinsolence.com/2015/08/24/more-horrible-antivaccine-science-from-theresa-deisher/

6. I believe vaccines are safe and effective, even though they’re not tested for Cancer, DNA mutation, or infertility.

This comes from reading vaccine inserts, which are records of what was noted during clinical trials. There is a great deal of other research done on vaccines and ingredients. The studies on these topics can be found at the EPA IRIS database. 

https://www.epa.gov/iris

All vaccines go through preclinical (in vitro) testing for mutagenic, carcinogenic, and fertility impairment potential. If a potential is shown then they have to go through clinical animal testing to figure out the specifics and see if it can be avoided or the risk reduced. The part of the insert that says they have not been through testing is for clinical animal testing and it is actually a good thing that nothing is ever there.

7. I believe that injecting Weed Killer, Formaldehyde, Aluminum, Mercury, Monkey Kidney Cells, Salt, Glucose, Fungus, Acetone, Alcohol, Antibiotics, Disinfectant, Castor oil, E.coli, Guinea Pig Cells, Urine, Pig Protein, Canine Cells, MSG, Germicide, Yeast, Shark Liver oil, Human and Cow Blood, Tar, Methanol, Antacid, Chloroform, Acids, Vitamins and Aborted Fetus DNA into my body is completely safe.

This made me laugh. There is no weedkiller in vaccines. There is NO elemental aluminum nor elemental mercury. The person who made this list has chemophobia. They need to learn about dose toxicity. 

https://www.chop.edu/centers-programs/vaccine-education-center/vaccine-ingredients

8. I believe we should trust the CDC, an independent company that owns several vaccine patents even though they have been caught lying and falsifying documents.

This one is hilarious. The CDC is a non-profit, governmental agency that does research and holds patents on technologies it develops. They lease those patents out which generates more research revenue for them. They do not own patents for whole vaccines, because vaccines are made up of many technologies, and they have never been caught lying or falsifying documents. 

https://www.cdc.gov/od/science/technology/techtransfer/index.htm

9. I believe that vaccines are safe and effective, even though the Department of Health and Human Services has been sued (and lost) because they have not filed any vaccine-safety-improvement reports to Congress in the last 32 years –as they are required by law to do.

This one is a very ignorant statement. A group called ICAN filed a lawsuit with the Health and Human Services Department of USA when they had failed to reply to a FOIA (freedom of information act) request for records relating to vaccine safety reports. HHS agreed to a stipulation, meaning they did not lose the lawsuit, that there are not reports submitted to Congress. That does not mean there are not vaccine safety studies. Details here. 

https://www.skepticalraptor.com/skepticalraptorblog.php/anti-vaccine-ican-settles-hhs-meaning/

10. I believe the (maybe) two hours of vaccine education doctors receive in medical school is sufficient. I believe doctors lie and bully parents into vaccinating because deep down inside they really care. I believe that the $40,000 bonus their clinic receives for vaccinating patients is not a factor for them.

I have dealt with these claims before. Doctors learn a great deal about vaccines.  And the $40,000 bonus is bogus. 

11. I believe and trust our government is honest and transparent. I also believe that the media is never manipulating, and we can trust in those whom we can NOT hold liable, because pharmaceutical companies are the most honest, reliable, and benevolent companies on the planet, working only for the greater good, and never, ever put profits before health.

No vaccine advocate takes the government at their word. We read vast amounts of scientific literature to ascertain whether vaccines are safe and effective or not. This is not about zealotry, as the above statement implies, but concrete evidence. We agree that profits should not be put before health. Insurance companies like vaccines very much because they are much less expensive than outbreaks. Same with universal healthcare. Vaccines work at keeping infectious disease rates low. 

12. I believe that the vaccines my children receive “Save Lives,” so, therefore, I agree to do my part and get the 88 or more vaccines recommended for Adults by the CDC (in order to “catch up”).

Not sure where she is getting 88 vaccines. The CDC adult immunization schedule certainly does not recommend that many. 

https://www.cdc.gov/vaccines/schedules/hcp/adult.html

I acknowledge the 2011 U.S Supreme Court’s opinion declaring vaccines “Unavoidably Unsafe.”

Vaccines are an unavoidably unsafe product, but they are not unsafe. And, the Supreme Court never ruled vaccines unavoidably unsafe. These two links explain. 

https://injury.findlaw.com/product-liability/what-is-an-unavoidably-unsafe-product.html

http://momswhovax.blogspot.com/2013/11/vaccines-and-unavoidably-unsafe-products.html

 

As you can see, this list is silly and irrational and not backed by sound science.  Typical of antivaxers. 

 

Remember to always verify your claims,

 

Kathy

Why I am not antivax

I could be antivax. Why am I not? Why do some people become antivax and others do not?

I have all the markers.  I have been hurt by medical professionals. I have had issues with medical professionals that could have led me to mistrust them all completely. I was a vegetarian for a while. I was very crunchy, in my early parenting years.  I shopped only at the organic food coop for years!

I have been harmed by doctors and had my health compromised by their actions.

I had a bad reaction to the MMR.

I had an anaphylactic reaction to an antibiotic once.

My second child was birthed out of the hospital, at a free-standing birth center, with a midwife. I have used naturopaths for healthcare. I once questioned whether aluminum adjuvants were safe. I once thought chicken pox vaccine was not necessary. I once thought flu vaccine lowered our resistance to infection and led to more illness in flu season. I have been, in the past, prescribed too much medication and that led to immune dysfunction. A naturopath helped me heal my gut.

Why am I not antivax?

It is because of this guy.

220px-Frans_Hals_-_Portret_van_René_Descartes

René Descartes (1596–1650) was a creative mathematician of the first order, an important scientific thinker, and an original metaphysician. I am not being pretentious. I was a math major in college, for a while, and then got a BA in sociology because I love the way math, rational thinking, statistics, and the study of humans intertwine. I minored in French. I am extremely rational, to the point of often not getting jokes or sarcasm. I read numerous of Descartes’ writings as an undergrad and as a graduate student in education.  Descartes is considered the “father of rational thinking” for a reason.

And by that, I mean that regardless of what I went through I kept thinking rationally about it and that is why I never became antivax or anti-medicine, despite my negative experiences.

Let’s visit the back story.

First of all, I was a really healthy kid.

29790569_214243605824079_8024306855318650880_n

Yep, that is me with pooka shell necklace in 3rd grade. Look at that tan.  In the 70s, we didn’t realize tanning was dangerous.

I was a healthy California beach kid. I spent most of my time, other than at school, outdoors, mostly barefoot. We roamed the hills, we played with gourds and thistles and we were gone from home as much as possible. Mom fed us mostly whole grains and fresh food. Occasionally, she would buy us Oreos or Ding Dongs but that was rare. We were eating bulgur wheat and brown rice and whole grain bread as soon as we had teeth. Mom never bought us soda or sugary cereal except on rare occasions when camping in summer. And I was a healthy kid. I had chicken pox twice, as a kid, but never broke any bones. I was in the ER for stitches a bunch as a toddler (I was incorrigible) but was never hospitalized nor had anything serious happen to me, ever, as a child. I had a few ear infections or cases of bronchitis, in elementary school, but nothing very serious. And, I had been fully vaccinated more than the standard schedule because I lived in Central America as a young child. So, unlike most California 70s kids, I had smallpox and other travel vaccines on top of regular vaccines.

But, I was a healthy kid!

As a teen, I was also healthy. I ate healthily, was slim, played sports, got a few sinus infections, but was mostly healthy. Rarely missed school.

kathyhighschool

By age 18, I was accepted to University of California Irvine, I was done with varsity tennis, I had passed the AP English and Biology exams, and I had a job as a Lancome counter girl at the local department store. I was working out almost daily. I was an advanced skier. I was very fit and healthy. I worked out daily, either running or ballet or a the gym for aerobics. I was an almost vegetarian and rarely ate junk food.

In early August 1984, I got infectious mononucleosis (EBV) and I was very sick. I ended up bedridden for 6 weeks, I had hepatitis, I had to quit my job, I had to go to the MD weekly for blood work, I was inches away from being hospitalized, according to my family MD.  I was in so much pain from hepatitis I could not stand up straight. I had so little energy that I needed help getting out of bed and getting downstairs.

It took about six weeks but I  recovered from EBV and started my freshman year of college and thrived except that I started having allergy issues. By mid-year 1985, I was referred to an allergist and started allergy shots and meds. I developed a few sinus infections and, once, had an anaphylactic reaction to the medication ( sulfa drugs).  I lost trust (long story) in the first allergist but I trusted our family doc and he sent me to another allergist.

The new allergist handled every bad cold the same way. I would get an x-ray, he would confirm sinus infection, and he would prescribe antibiotics and steroid nasal spray and prednisone.  The two years I spent with him, I went through this routine an average of 7 times each year. So, in two years, I went through 14 sinus x-rays, 14 rounds of antibiotics, 14 rounds of steroid nasal spray, and 14 rounds of prednisone. It is a wonder I was still able to work and be a full-time student and even live in France as an exchange student, but I did all of that and maintained a GPA of 3.8 and I graduated cum laude.

By 1987, I was immune compromised, had systemic yeast infections, had chronic thrush, and was sicker than well. I managed to get through graduate school, while working full time but was still suffering from chronic infections.

In 1991, there was a measles outbreak on my university’s campus and I had to get another MMR. I had a bad reaction to it and ended up with my arm in a sling for a week and on pain meds.  My arm swelled up like there was a tennis ball in it, at the injection site. It took a week to go away.

By 1992, I was diagnosed with irritable bowel syndrome.

At this point, I could have become anti-modern medicine. They certainly were not doing anything to help me get better! They never had answers for me, just pills for my symptoms.

In 1994, I got married. My husband and I wanted to have children but he worried I was on too many medications. So, I decided to give something new a try – a naturopath. At the time, we lived in Seattle which was then home to the Bastyr University clinic.  Growing up in California, I had never heard of a naturopath. Believe it or not, Washington state is much more liberal about licensing alternative healthcare practitioners than California. Being literally desperate, I gave the Bastyr clinic a try. I ended up with Nooshin Darvish, who was amazing and helpful and very respectful of me putting limits on the scope of her practice. To this date, I credit her with helping me be alive today and have two children. She was wonderful.

Okay, okay, you are wondering how the hell I could speak positively about a naturopathy. They are so wooey! They practice pseudoscience!  Well, Nooshin did two things with me that solved pretty much everything. She sent me for bloodwork and she had me get a sample of my poop and tested it. I had been to multiple medical doctors, over the years, and no one had ever done either of those things.  I even had a camera put down my throat and a barium enema xray and no one ever analyzed my stools for anything. With the bloodwork, Nooshin discovered I was anemic and had very low thyroid. With the stool sample, she discovered that I had yeast overgrowth in my digestive system.  Given the fact that I still occasionally got thrush in my throat, this was not a surprise. She put me on iron supplements, probiotics, Synthroid, and had me go on an elimination diet.  I discovered that corn and wheat products made my digestive system ache so I avoided them, as well as alcohol and sugar not related to a few servings of fruit a day. I ate this way for about two years. I probably didn’t need to go that long on this diet but I was afraid to stop because, within six months, I was feeling well again! She also introduced me to the neti pot and sinus lavage.  By 1996, I was healthy enough to start thinking about having children! We bought our first house and, instead of having kids right away, we spent 5 years fixing up a major fixer, but I was healthy again and that was the point. Also, nothing Nooshin did with me was super wooey (at my request).  I purposely avoided homeopathy and acupuncture and anything I felt was not well supported by published studies.

But, again, at this point, I could have gone into the deep end and become anti-medicine and anti-vaccine. It is really only through my insistence on paying attention to evidence that I stayed the course. I always asked her to give me evidence for whatever she wanted to do and we would discuss it. After she graduated and I switched to a private practice ND, Dr Paris Preston in Seattle, I stayed the same course – evidence first. There really are some good naturopaths, you see, ones that base their ideas on scientific evidence.  (some can be found at NDs for Vaccines). I no longer live in Seattle and my children and I see a family doctor for our healthcare now, but I do credit naturopathy for where I am today.

So, my question is, why do some people stay rational and others stop?   Why do some people become antivax and others do not? What can we do to stop this or help them?

Discuss!

 

 

Remember to think for yourself!

Kathy